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Archana
  • Female
  • Tampa, FL
  • United States
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Archana's Discussions

School issue....

Started this discussion. Last reply by Archana Mar 20, 2013. 2 Replies

 

ADITYA'S PAGE

Latest Activity

Archana replied to Art's discussion Foldable Electric Wheelchair travel in Italy
"I am taking the trip to Italy next week with my 15 year old. I have heard that the place is not very accessible. I hope we can visit all places he has in his bucket list. I will like to touch base with you regarding the wheelchair you had mentioned.…"
Jul 4, 2016
Yenitza left a comment for Archana
"+1 779-435-2359 her name is Naija."
Dec 5, 2014
Yenitza left a comment for Archana
"Archana i lost your number can you please call me. Also i met someone that would like to talk to you her name is Najia. Her son has the same type as yours. Hope to hear from you. God bless you and your family."
Dec 5, 2014
Yenitza left a comment for Archana
"Hello Archana, my number has changed 813-407-6323. Would love to meet you and your son ;)"
Nov 8, 2014
Archana replied to Archana's discussion Is Grand Canyon sight seeing spots wheelchair Accessible ?
"Thanks "
Jun 8, 2013
Archana posted a discussion

Is Grand Canyon sight seeing spots wheelchair Accessible ?

We have planned a trip to GC in July.I am little worried about wheelchair accessibility at GC. Have any of you visited this place with DMD kids?Please provide any tips that can be helpful. Any information /suggestions are appreciated.ThanksSee More
Jun 7, 2013
Archana replied to Archana's discussion School issue....
"Thank you.Each bit of information is very important for me.He goes to the charter school .He was in IEP at public school till 5 th grade but as soon as we started at charters school for middle school most of his IEP had been not in…"
Mar 20, 2013
Brian Denger replied to Archana's discussion School issue....
"Please ask your school to provide an "in service" training session to be provided by the district's physical therapist on appropriate transfers.  They may need an aide or paraprofessional to make the transfers instead of…"
Mar 20, 2013
Archana posted a discussion

School issue....

Aditya  recently fell at school while he was transferring himself from GO-GO scooter to his chair.His teachers are now putting pressure on him not to get up from  his scooter at all.He dislikes that idea.He is moderately ambulatory , and wants to keep up with his ability.He goes to a Charter school in Florida.He gets no help other than few favors due to kindness of some people.What should I be doing in this siituation. He is in 6 th grade.See More
Mar 19, 2013
Archana replied to Veronica E.'s discussion Our Max
"My heartfelt condolences for the family.May lord rest his soul in peace."
Dec 14, 2011
Archana replied to Trinh Nguyen's discussion Walking change
"My son walks with right (leg) inward  toe movements too Both.my therapist and the Doctor said that it is the way he is compensating to keep on walking as his gleuties( thIgh) and the lower back muscles are getting weaker."
Oct 17, 2011
Archana commented on Pat Furlong's blog post Co-Blog: Anniversaries
"It was a very nice try .We all are in the same boat.My son was 6 years old when he got diagnosed.In fact that was the time in my life when everything appeared picture perfect .I had my second baby (girl).I thought my family is complete, and I can…"
Sep 21, 2011
shashi champaneria and Archana are now friends
Jul 30, 2011
Archana and Traci Griffin are now friends
Jul 28, 2011
Archana added a discussion to the group Dr. Wong-Cincinnati Children's Hospital
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CINNI VISIT

We will be there on aug 25 ,and 26.Will love to meet the family with appt on same days .
Jul 18, 2011
Archana and vilma rodriguez are now friends
Apr 26, 2011

Profile Information

About me:
Mom
Name(s) of child(ren)/individual(s) with Duchenne:
Aditya
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
tampa fl

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Comment Wall (9 comments)

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At 8:23pm on December 5, 2014, Yenitza said…
+1 779-435-2359 her name is Naija.
At 8:21pm on December 5, 2014, Yenitza said…
Archana i lost your number can you please call me. Also i met someone that would like to talk to you her name is Najia. Her son has the same type as yours. Hope to hear from you. God bless you and your family.
At 8:35am on November 8, 2014, Yenitza said…
Hello Archana, my number has changed 813-407-6323. Would love to meet you and your son ;)
At 2:54am on May 5, 2011, Yenitza said…

Hi Archana:

 

I wish I would have seen your message sooner. I am really sorry. I have not logged in for probably over a year. My baby brother passed away and it has been a difficult time.

 

My son is 6 and I really would love to meet you and your son one day soon if possible. I think it would be good for them and us.

 

Feel free to call me or write back which ever you feel more comfortable with. 813-407-6603.

I hope to hear from you ;)

At 11:35pm on January 26, 2011, amit gupta said…

hi arcahna, sorry we haven't been able to talk yet...please call me at your convenience on my cell ph 281.216.0571

 

wishing you/family the very best

-amit

At 2:06pm on December 31, 2010, Nidhi Saxena said…

Hi Archana

 

I am in virginia my son was diagnosed with DMD in Feb 2010.  He is 6 years old and have started Kindergarten, I heard about you from Bains. My email is nidhijohri@hotmail.com.

 

Nidhi

At 12:48pm on November 13, 2009, baljit kaur said…
Hello Archana
No I do not know my son's deletion/mutation,but I will ask at his next muscle appt.It is very hard to see them fall and all the frustation that comes with it .He would ask me why a lot of times when he stpooed walking but I think he has kind of accepted it now.PT is helping with is movement and he will start aqua therapy next week.
He wears his AFO's every night but will not take any steroids.He says that the taste is too awful.I wonder if any other boys have this problem?Most boys on here seem to take them no problem. Our boys are only a few weeks apart in age Arun(10/21/00).

Take care and all the best to Aditya
Baljit
At 7:53pm on November 12, 2009, baljit kaur said…
Hello Archana
No ,I do not speak Hindi only Punjabi.If someone speaks Hindi very slowly I can understand because it is similar to Punjabi. We live in Delaware. Arun turned 9 last month.He stopped walking at 81/2, which was quite a shock for everyone .It wasn't all of a sudden but gradual over a few months.He started getting tired more easily and would fall more often.
How is your son doing?
Baljit
At 10:57pm on August 29, 2009, Tina said…
Our son will be 9 in January. He can climb stairs, jump, and run. He can walk about 2 blocks before tiring. We use a jogging stroller for long distances.
He takes deflazacort every other day, co q 10, protandim, losartan, and calcium and vitamin d every day.
We try to be compliant with nightly stretches and he does not wear AFO's to bed. He refuses to wear them.
Hopefully, skipping 45 will come soon after 51 is successful! It's the 2nd most popular skip needed and proves to show a mild form known as Beckers after exon skipping.
 
 
 

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