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Archana
  • Female
  • Tampa, FL
  • United States
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Archana's Friends

  • amit gupta
  • ANAND SHAH
  • Vicky Singh
  • shashi champaneria
  • Nidhi Saxena
  • Nupur Patel
  • Shea Holbrook
  • RAKTIM SINGH
  • Rita Felling
  • baljit kaur
  • Ana Vaish
  • Shelley
  • Traci Griffin
  • Yenitza
  • vilma rodriguez

Archana's Groups

Archana's Discussions

MDA funding for DMD

Started Jan 14, 2011 0 Replies

FMLA question

Started this discussion. Last reply by Archana Oct 27, 2010. 2 Replies

Insurance issue

Started this discussion. Last reply by Archana Jul 15, 2010. 5 Replies

 

ADITYA'S PAGE

Latest Activity

Archana replied to Veronica E.'s discussion Our Max
"My heartfelt condolences for the family.May lord rest his soul in peace."
Dec 14, 2011
Archana replied to Trinh Nguyen's discussion Walking change
"My son walks with right (leg) inward  toe movements too Both.my therapist and the Doctor said that it is the way he is compensating to keep on walking as his gleuties( thIgh) and the lower back muscles are getting weaker."
Oct 17, 2011
Archana commented on Pat Furlong's blog post Co-Blog: Anniversaries
"It was a very nice try .We all are in the same boat.My son was 6 years old when he got diagnosed.In fact that was the time in my life when everything appeared picture perfect .I had my second baby (girl).I thought my family is complete, and I can…"
Sep 21, 2011
shashi champaneria and Archana are now friends
Jul 30, 2011
Archana and Traci Griffin are now friends
Jul 28, 2011
Archana added a discussion to the group Dr. Wong-Cincinnati Children's Hospital
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CINNI VISIT

We will be there on aug 25 ,and 26.Will love to meet the family with appt on same days .
Jul 18, 2011
1 Comment
Archana and vilma rodriguez are now friends
Apr 26, 2011
Archana favorited PPMD's video
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One Voice to End Duchenne

Apr 12, 2011
Archana commented on Pat Furlong's blog post State of the Union
"I really apprecaite you for the hard work and zeal you put in for our sons.Thanks Pat for your unconditional support and leadership."
Feb 4, 2011
Archana replied to DanielsDad's discussion Night Splints
"I live in Tampa.we have few companies like West coast brace and limbs and hanger prothestics .we had actually used both of these  over the years and it helped.Of course they were been covered by my insurence plan for most part.Hope this helps."
Feb 4, 2011
Archana replied to DanielsDad's discussion Medicaid, Level 1, Misc. Waivers...etc in the group Florida Families
"I have tried for medicaid .also for SSI(for my son) but got denied for both as my income is above the set level for qualification.After being denied from many other state agency for family and children I have finally given up.I will really like…"
Feb 4, 2011
Archana posted a discussion

MDA funding for DMD

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Jan 14, 2011
0 Comments
Archana posted a photo
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Aditya's art

Jan 9, 2011
0 Comments
Archana posted a discussion

FMLA question

I have intermittent FMLA ,and have used it for the first time today(in last 3 year).Do I have to have any thing as proof of my sons sickness?,He was absent from school today due to fever and cough, but he kept on insisting to go to school as he had a test today.I could have send him as he seems to be better than yesterday but I was not sure that if I took FMLA today for him ,could I have sent him to school for taking the test,Please tell me how and when FMLA can be used .Thanks
Oct 26, 2010
2 Comments
Archana posted a discussion

Insurance issue

Recently I was given prescription for bathroom modification's  and shower chair by my doctor for my son.on contacting insurance company they denied to cover for it , instead suggested me to write for pre determination approval to the company. Have any one you had to face such problems and how did you finally manage to get a solution.I am very much frustrated that the insurance .companies can deny what is really a medical necessity for our sons.I would appreciate any suggestion.We dont not have…See More
Jul 9, 2010
5 Comments

Profile Information

About me:
Mom
Name(s) of child(ren)/individual(s) with Duchenne:
Aditya
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City and State:
tampa fl
Country:
usa

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Comment Wall (6 comments)

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At 2:54am on May 5, 2011, Yenitza said…

Hi Archana:

 

I wish I would have seen your message sooner. I am really sorry. I have not logged in for probably over a year. My baby brother passed away and it has been a difficult time.

 

My son is 6 and I really would love to meet you and your son one day soon if possible. I think it would be good for them and us.

 

Feel free to call me or write back which ever you feel more comfortable with. 813-407-6603.

I hope to hear from you ;)

At 11:35pm on January 26, 2011, amit gupta said…

hi arcahna, sorry we haven't been able to talk yet...please call me at your convenience on my cell ph 281.216.0571

 

wishing you/family the very best

-amit

At 2:06pm on December 31, 2010, Nidhi Saxena said…

Hi Archana

 

I am in virginia my son was diagnosed with DMD in Feb 2010.  He is 6 years old and have started Kindergarten, I heard about you from Bains. My email is nidhijohri@hotmail.com.

 

Nidhi

At 12:48pm on November 13, 2009, baljit kaur said…
Hello Archana
No I do not know my son's deletion/mutation,but I will ask at his next muscle appt.It is very hard to see them fall and all the frustation that comes with it .He would ask me why a lot of times when he stpooed walking but I think he has kind of accepted it now.PT is helping with is movement and he will start aqua therapy next week.
He wears his AFO's every night but will not take any steroids.He says that the taste is too awful.I wonder if any other boys have this problem?Most boys on here seem to take them no problem. Our boys are only a few weeks apart in age Arun(10/21/00).

Take care and all the best to Aditya
Baljit
At 7:53pm on November 12, 2009, baljit kaur said…
Hello Archana
No ,I do not speak Hindi only Punjabi.If someone speaks Hindi very slowly I can understand because it is similar to Punjabi. We live in Delaware. Arun turned 9 last month.He stopped walking at 81/2, which was quite a shock for everyone .It wasn't all of a sudden but gradual over a few months.He started getting tired more easily and would fall more often.
How is your son doing?
Baljit
At 10:57pm on August 29, 2009, Tina said…
Our son will be 9 in January. He can climb stairs, jump, and run. He can walk about 2 blocks before tiring. We use a jogging stroller for long distances.
He takes deflazacort every other day, co q 10, protandim, losartan, and calcium and vitamin d every day.
We try to be compliant with nightly stretches and he does not wear AFO's to bed. He refuses to wear them.
Hopefully, skipping 45 will come soon after 51 is successful! It's the 2nd most popular skip needed and proves to show a mild form known as Beckers after exon skipping.
 
 
 

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