Hi, I'm Annette from the UK. I am married to Stewart and we have one little lad, Joe, 6 who was diagnosed with DMD in May 2007. We are also expecting another baby in May 09...a little girl this time. I am not a carrier.
About my family:
We are devastated about Joe but we will do whatever it takes to play a part in finding a cure. We do our own charity events called 2swim4life. The first event last october has raised over £25,000 We also did a 10 mile swim "10miles for Joe" in May and that raised £11,000.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
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I see you found out how to change your page. Sorry it took so long to get round to replying - much of the time I send replies from my i-phone but it takes too long to write large messages so I leave the longer ones till I'm on the PC. Your page looks very pretty now!
I am now pregnant as well, due August, so we're kind of in the same boat together!
Anyway, we have finally got the kids to bed and now it's mum and dad time - ahhhhh, the serenity!!!!!
Many thanks for your positive informative message Annette.
I have actually forwarded it onto Lars's parents as I believe it is something they would really like to hear at the moment, especially as their doctors are messing them around.
hello annette ,congratulation for the baby , i hope so joe doing well ,I need just ask you he cpk it high or no ,mohamed is almost 8000 this yeur i saw him he get difficulter on the step he can not doing he should use four arms but when he walk is ok for know .
Welcome to our big family,my son[ 7yrs old] also have the same deletion exon45 only,my wife isn't a carrier,and we have a little girl[in march will be 5yrs old]
Our son MOHAMED ALI is doing good thank GOD,