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*annette*
  • Female
  • Hampshire
  • United Kingdom
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*annette*'s Friends

  • Ian Anthony Griffiths
  • Johanna
  • Clare Cartwright
  • Sandra Fitzpatrick
  • Danielle
  • Emma Jerred
  • KellyR
  • Sharyn Thompson
  • claire holloway
 

*annette*'s Page

Profile Information

About me:
Hi, I'm Annette from the UK. I am married to Stewart and we have one little lad, Joe, 6 who was diagnosed with DMD in May 2007. We are also expecting another baby in May 09...a little girl this time. I am not a carrier.
About my family:
We are devastated about Joe but we will do whatever it takes to play a part in finding a cure. We do our own charity events called 2swim4life. The first event last october has raised over £25,000 We also did a 10 mile swim "10miles for Joe" in May and that raised £11,000.
Name(s) of child(ren)/individual(s) with Duchenne:
Joe
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Petersfield, Hampshire

Comment Wall (12 comments)

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At 9:32pm on January 4, 2013, kimmy watters said…

 hi annette  how are you my name is kimmy watters,  and your little boy is very cute how are you coping. sincerely  kimmy watters

At 1:03pm on April 17, 2009, Ian Anthony Griffiths said…
Hi Annette!

Hope you, Stew and Joe and lil miss are all well?

Ian
At 5:21am on January 9, 2009, Clare Cartwright said…
Hi there

See you have found me on good old FB :o)

Glad Joe is doing well, hey it's been a struggle for me to get outta bed this past week too. Yes I expect he will be waking you at 6am tomorrow though...bless.

Me xxx
At 4:21am on January 9, 2009, Clare Cartwright said…
Hi Annette

The doc said that it looks like he probably does have it, so still no definate Yes. They are now waiting for appointment with a specialist.

How are you doing?

Clare xx
At 3:11pm on January 4, 2009, Sharyn Thompson said…
Hi Annette,

I see you found out how to change your page. Sorry it took so long to get round to replying - much of the time I send replies from my i-phone but it takes too long to write large messages so I leave the longer ones till I'm on the PC. Your page looks very pretty now!

I am now pregnant as well, due August, so we're kind of in the same boat together!

Anyway, we have finally got the kids to bed and now it's mum and dad time - ahhhhh, the serenity!!!!!

Speak soon,
Sharyn.
At 2:23pm on January 2, 2009, djamel fathi said…
hello annette he is not yet on any medication ,we going to started to him this month ,you know you are not carrier me to , and your son he has delition same my son in exon 45 .
At 8:10am on January 2, 2009, Clare Cartwright said…
Many thanks for your positive informative message Annette.
I have actually forwarded it onto Lars's parents as I believe it is something they would really like to hear at the moment, especially as their doctors are messing them around.
Thanks again.
Clare xx
At 7:44am on January 1, 2009, KellyR said…
Hey Annette! :-) xxx
At 7:47pm on December 30, 2008, djamel fathi said…
hello annette ,congratulation for the baby , i hope so joe doing well ,I need just ask you he cpk it high or no ,mohamed is almost 8000 this yeur i saw him he get difficulter on the step he can not doing he should use four arms but when he walk is ok for know .
At 5:07pm on December 30, 2008, djamel fathi said…
Welcome to our big family,my son[ 7yrs old] also have the same deletion exon45 only,my wife isn't a carrier,and we have a little girl[in march will be 5yrs old]
Our son MOHAMED ALI is doing good thank GOD,
 
 
 

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