"clare, do you just buy l-carnitine from health store? did you not consider creatine?
Tammy: I noticed from your profile that your son is less than 5 yrs old...a lot of boys would continue to improve till 6-7 yrs without any supplements, so I am not…"
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supplements
Started this discussion. Last reply by amit gupta Jun 3, 2013. 9 Replies 1 Favorite
Can anyone tell me something about these supplements- Methyl Max tablets, Creatine, Mucoperm, lipogen and BCAA? Have you ever used any of these supplements,what is the recommended dosage and what…Continue
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Clare Harper replied to ana marinkovic's discussion supplements"i have been giving lewis l carnitine and omgea 3,6,9 at the same time as they are supposed to have a synergistic effect, i think they help,"
Tammy replied to ana marinkovic's discussion supplements"Hi Amit, send me your email and I will make a list of what he is taking...."
amit gupta replied to ana marinkovic's discussion supplements"Tammy, how old is TJ now and can you tell what other supplements are you giving? Our son (10 in sept) takes dflz, idebenone, protandim and calc/vit d."
Tammy replied to ana marinkovic's discussion supplements"I've been giving TJ L-Carnitine for several months. He is on several supplements. I will have a better idea if any of them are helping when he gets re-evaluated in July at CHOP. I do believe he is doing a better than before he…"
amit gupta replied to ana marinkovic's discussion supplements"tammy, how long have you been giving l-carnitine?"
Tammy replied to ana marinkovic's discussion supplements"I don't know about the others, however our nutritionist does NOT recommend creatine because it can effect the liver in Duchenne Boys. He said to use l-carnitine instead.
http://www.ncbi.nlm.nih.gov/pubmed/23209572"
ana marinkovic posted a discussionsupplements
Can anyone tell me something about these supplements- Methyl Max tablets, Creatine, Mucoperm, lipogen and BCAA? Have you ever used any of these supplements,what is the recommended dosage and what are your experiences with the products?See More
Profile Information
- Name(s) of child(ren)/individual(s) with Duchenne:
- ilija
- Age(s) of child(ren)/individual(s) with Duchenne:
- 4-6
- City:
- raska serbia
ana marinkovic's Photos
Comment Wall (1 comment)
- At 3:09pm on August 1, 2012,
StaffStephanie Matthes said… Welcome Ana! We hope using the community site to connect with families all over the world to share stories, news, and information about Duchenne is empowering for you and your family.
Please don't hesitate to contact us by phone, email, or message if you ever need anything -- 800-714-5437 - community@parentprojectmd.org
And if you haven't already, we hope you consider registering on PPMD's main website. Registering allows us to send you information tailored to parents & families of boys with Duchenne, e-newsletters, additional web-based research reports, and other information specifically targeted for members of the community.
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