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ana das
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ana das's Discussions

Relocating to Nashville

Started this discussion. Last reply by ana das Jan 12. 2 Replies

Hello,We will be relocating to Nashville. We have a 16 year old with DMD and would like to connect with other DMD families in the area. Would like to know what the experience is for state as well as…Continue

Does the state of Florida and Tennessee offer acceptable assistance for Duchenne patients?

Started Sep 6, 2016 0 Replies

I am looking at a possible move to Florida (or Tennessee) from Ohio. My son is 16 and has Duchenne MD. We want to keep him in Ohio till high school is done. Does anyone know if Florida or TN offer…Continue

Tags: tennessee, florida

Connecting with DMD Families Residing in Tennessee

Started Jul 5, 2016 0 Replies

We are planning on moving to Tennessee next summer. We have a 15 year old with DMD. We would like to know what the state benefits with Medicaid and including Personal Care Assistant hours.Are you…Continue

Sources for Financial Assistance in Ohio for Home Modification and Handicapped Van Modifications

Started Oct 13, 2014 0 Replies

Hello,My son is on the priority wait list for a medicaid waiver in Ohio. Not sure when he is likely to receive that. In the mean time, his situation has changed suddenly within a couple of weeks. We…Continue

 

ana das's Page

Latest Activity

ana das replied to ana das's discussion Relocating to Nashville
"Hi.. Thanks for the response. We will be moving in June but will be traveling to Nashville in search of homes before that. We would love to meet you.  We are moving from Columbus, Ohio. What is the best way to reach out to you when we do…"
Jan 12
Susan Bartholomew Metheny replied to ana das's discussion Relocating to Nashville
"I'm not sure about the coverage, but welcome to Nashville!  The care here at Vanderbilt is excellent.  Have you seen Dr. Burnette yet?  We are in the Hendersonville area and have a 13 year old.  I would love to introduce you…"
Jan 11
ana das posted a discussion

Relocating to Nashville

Hello,We will be relocating to Nashville. We have a 16 year old with DMD and would like to connect with other DMD families in the area. Would like to know what the experience is for state as well as county benefits. Also, is medicaid coverage good in tn?See More
Jan 10
ana das is attending PPMD's event
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[Upcoming Webinar] Navigating Access to Therapies Once Approved at Online Webinar - Eastern Time Zone

September 29, 2016 from 1pm to 2pm
Thursday, September 29th at 1pm ETWith last week’s long-awaited and historic accelerated approval of Exondys 51 and other potential therapies currently in review and in late stages of development, the prospect of navigating multiple health insurance plans and patient assistance programs may feel daunting. PPMD continues to work towards broad access for our community and is committed to helping you master these new and complex systems. Join us Thursday, September 29th at 1pm ET for the first in…See More
Sep 29, 2016
ana das posted a discussion

Does the state of Florida and Tennessee offer acceptable assistance for Duchenne patients?

I am looking at a possible move to Florida (or Tennessee) from Ohio. My son is 16 and has Duchenne MD. We want to keep him in Ohio till high school is done. Does anyone know if Florida or TN offer good assistance such as medicaid benefits? hours covered for PCA?Does anyone have any specific experience either in Florida or TN that would sway me away from a job in these states?any input is greatly appreciated. Thank you.See More
Sep 6, 2016
ana das posted a discussion

Connecting with DMD Families Residing in Tennessee

We are planning on moving to Tennessee next summer. We have a 15 year old with DMD. We would like to know what the state benefits with Medicaid and including Personal Care Assistant hours.Are you happy with the benefits your child is receiving there?Would appreciate your response. See More
Jul 5, 2016
ana das posted a discussion

Sources for Financial Assistance in Ohio for Home Modification and Handicapped Van Modifications

Hello,My son is on the priority wait list for a medicaid waiver in Ohio. Not sure when he is likely to receive that. In the mean time, his situation has changed suddenly within a couple of weeks. We are looking at ways to convert our van to make it handicapped accessible. However, the cost is pretty significant to pay out of pocket. I understand that the medicad waiver will provide some cost towards the conversion but not all. Since he does not have a waiver yet, we do not have access to…See More
Oct 13, 2014
ana das posted a discussion

As anyone had to stop Growth Hormones because of side effects such as joint pain, cysts, or moles?

We chose to stop growth hormones for our son because he was complaining of joint pain. Also, since starting growth hormones two years ago he has had a cyst and benign lesion? I was told by a physician that the number of moles tend to increase with the growth hormones. Since we have not seen a dramatic change in height, we chose to discontinue.See More
Nov 6, 2013
ana das posted a discussion

Support Services in San Antonio, Texas

Hello,Considering moving to San Antonio. What school system is the best to address the needs of a child with Duchenne? Does the county/state have any financial assistance programs? Is the support group active?ThanksSee More
Apr 2, 2013
ana das posted a discussion

MDA Services in Halifax, Nova Scotia

Hello,Does anybody have any information on MDA services in Nova Scotia. Also, does anyone know anything about disability services in Nova Scotia. Would appreciate any input?See More
Jan 17, 2013
ana das posted a discussion

MDA Support Group in Oklahoma City

Hello,I would like to know more about the MDA support group in Oklahoma City. We are also interested in receiving information regarding special services in the Edmond school district. We have a 12 year old with DMD and plan to relocate to Edmond. We have heard great things about the school district. However, we would like to know if there are any kids with DMD in the Edmond school district who can speak about their experience.I would appreciate any input or advise.ThanksSee More
Oct 23, 2012
ana das is now a member of PPMD Community
Dec 20, 2011

Profile Information

Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
columbus, ohio

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