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amit gupta
  • Male
  • houston, tx
  • United States
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  • Anup Kalra
  • Andrea Cleary
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  • Ashok Laishram
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  • Sharon Hesterlee
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amit gupta's Discussions

High Calcium

Started Oct 7, 2013 0 Replies

My son's blood cacium level has been 10.5 to 10.7 for the last couple of months and he has complained of abdominal pain that goes away after a while. We have tried Miralax/Prevacid/Metamucil without…Continue

Liquid Calcium Gels

Started this discussion. Last reply by amit gupta Mar 19, 2013. 2 Replies

Has anyone tried Carson's Liquid Calcium Gels? My son hates the Calcium tablets and I am wondering if the gels are effective.Continue

Protandim

Started this discussion. Last reply by Trinh Nguyen Mar 28, 2013. 3 Replies

Has anyone been giving a full tablet of Protandim daily? My son (9.5, 57 lbs) has been on 1/2 tab of Protandim for over an year and I am wondering if it could be increased to 1 tab.I would appreciate…Continue

Yet another mouse study

Started this discussion. Last reply by Rupjani B Aug 28, 2012. 1 Reply

24 - (Muscle Nerve 46: 400–406, 2012) DOXYCYCLINE AMELIORATES THE DYSTROPHIC PHENOTYPE OF SKELETAL AND CARDIAC MUSCLES IN mdx MICEJULIANO ALVES PEREIRA,  ANA PAULA TIEMI TANIGUTI, CINTIA MATSUMURA,…Continue

 

amit gupta's Page

Latest Activity

amit gupta replied to Chris Diemler's discussion Eplerenone
"David, I am very happy to hear about your son's results and wish him and everyone in your family the very best.."
Tuesday
amit gupta commented on Sharon Hesterlee's blog post PPMD Awards $100,000 in Exploratory Grants
"sharon, where is vbp15 on the trial possibility?"
Mar 25
amit gupta replied to Joy Narmore's discussion Growth Hormone
"Thanks Michael. I am generally in agreement with you. Our concern is primarily due to my son's height. If the side effect of HGH is faster decline due to muscles not keeping up with height gain then that would be unacceptable to us.…"
Jan 10
amit gupta replied to Joy Narmore's discussion Growth Hormone
"Thanks Michael. I think cincinnati did a study on IGF and likely have more data on the use of gh therapy in DMD (more than anecdotal). Does anyone have access to what the cinci results were?"
Jan 9
amit gupta replied to Joy Narmore's discussion Growth Hormone
"Michael, what is your son's mutation? 20 and walking is on the rare end of the natural history. Would you mind sharing anything unusual that you might be giving him? (other than dflz, calcium and vit d)? How are his bones? thanks."
Jan 7
amit gupta commented on Sharon Hesterlee's blog post Getting There Faster
"Shron, correct me if I am wrong, but I thought Dr Ruegg presented preclinical report back in April 2013 at the MDA? What do you think is taking so long to present any other report if the preclinical study was complete prior to April?"
Dec 2, 2013
amit gupta commented on Sharon Hesterlee's blog post Getting There Faster
"Thanks Sharon. For Tamoxifen - the goal is to have tamoxifen in a clinical trial with Duchenne patients starting in early 2014. Is this still valid?"
Dec 2, 2013
Moein replied to amit gupta's discussion deflazacort regimen
"I decided to switch my son who is on 10 days on/off 30 mg to daily regimen but, with smaller dose?I mean in case of deterioration, and daily regimen will be the best choice,so is it easy to put him on 21 mg instead of 30…"
Nov 1, 2013
amit gupta posted a discussion

High Calcium

My son's blood cacium level has been 10.5 to 10.7 for the last couple of months and he has complained of abdominal pain that goes away after a while. We have tried Miralax/Prevacid/Metamucil without much help. His stools are fine and we dont feel he is constipated. Does any one have any experience with high calcium levels?See More
Oct 7, 2013
amit gupta replied to Tulika's discussion simple and elegant description for a stem cell cure
"tulika, helen blau told about the new mouse model over 2 years ago...this was discussed here as well.."
Sep 24, 2013
amit gupta replied to Denise Bretsik's discussion Summit SMT C1100
"paul, you said summit is recruiting for p1b? i didn't see it on clinicaltrials.gov"
Jul 11, 2013
amit gupta commented on Brooke Lyons's blog post newly diagnosed with a cautious Becker's MD, info please
"Hi Brooke, in-frame deletions beginning in the early part of the gene are somewhat unpredictable in terms of duchenne or becker...it could be either.... Not sure how the DNA test showed the amount of dystrophin...i thought ony a muscle biopsy…"
Jun 10, 2013
amit gupta replied to ana marinkovic's discussion supplements
"clare, do you just buy l-carnitine from health store? did you not consider creatine? Tammy: I noticed from your profile that your son is less than 5 yrs old...a lot of boys would continue to improve till 6-7 yrs without any supplements, so I am not…"
Jun 3, 2013
amit gupta replied to ana marinkovic's discussion supplements
"Tammy richagupta@yahoo.com thanks. "
Jun 1, 2013
amit gupta replied to ana marinkovic's discussion supplements
"Tammy, how old is TJ now and can you tell what other supplements are you giving? Our son (10 in sept) takes dflz, idebenone, protandim and calc/vit d."
Jun 1, 2013
amit gupta replied to ana marinkovic's discussion supplements
"tammy, how long have you been giving l-carnitine?"
May 31, 2013

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
1
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
houston, tx

Comment Wall (7 comments)

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At 4:59pm on April 9, 2011, Andrea Cleary said…

Hi Amit,

Simon has a mobility scooter which he uses only for school field trips or family outings where there would be too much walking for him, because he does get tired (like the zoo or an amusement park). Or say if he spent most of the day at a birthday party running around, then he would use it for our nightly family dog walk. But he goes to school everyday without any aids (except a cart on wheels to carry his stuff from one classroom to another), does the 2 flights of stairs several times a day, rides his 2 wheel bike on flat streets without hills. He does waddle, and sticks out his tummy, but does not do the Gower movement anymore since starting Deflazacort, and he can jump a little bit. He swims well but can't really follow formal lessons anymore, can't do the required laps, etc to progress to the next level. He goes to Scout camp in the summer with his scooter. His calves have increased in size this past year, but nothing else has really changed. His neurologist and rehabilitation doctors are very impressed with his abilities.

How is your son doing, and the family?

Good energy to you,

Andrea

At 9:26pm on March 25, 2011, Lisa Jones said…

Amit,

If you call 1-888-894-1374, the clinical concierge/guest services center can fill you in regarding charity flights. So far, we have not used these services. 

 

At 8:04am on February 24, 2011, irishgirl said…

Amit:

Was your son just diagnosed?

Liam turned 11 last November and has a deletion of exons 48, 49 and 50 - in frame.  We await the exon 51 skipping trials to come to some fruition.  We got the diagnosis when he was 8 and a half - fairly late in the game.  We could not believe it because he had no glaring symptoms of DMD.  We first started him on Prednisone which was horrid and he had a bad reaction to it, so we switched to Deflazacort and have been quite happy with it - as to side effects. I really hate steroids.  We had a biopsy done when he was 9.5 which showed DMD and less than 3% dystrophin production.  When we began the steroids, there was no significant changes in regard to strength and stamina as is seem with most children.

Today, he is 11 and is still fully mobile - used no devices what so ever - which is rare.  He runs, jumps, swims, rides horses - and is just a spectacular kid. He is an A student in school and really loves life. The key to our family is that we never show our unhappy DMD sides to Liam. He thinks we do not care and that in turn affords him a very happy childhood. He, at this point, doesn't care that he's got DMD.

Tell me all about your son and what you do for him.  I like to hear what others offer their children and how they are fairing.

Thanks for the message.

Noreen

 

At 5:04pm on February 11, 2011, Laurie Paschal said…

Hi Amit,

Yes, we're in the Houston area (Montgomery).  We have a pretty good network of parents here in the area.  If you give me your email address, I'll add you to our mailing list for when we get together.  My son is 8.  He was diagnosed just before his 3rd birthday.  Right after diagnosis is the toughest time.  If you ever need to talk you can give me a call.  My number is 936-582-1537.

--Laurie

At 12:04am on January 25, 2011, Ashok Laishram said…
Hi Amit this is my email id ashok.laishram@gmail.com
At 10:17pm on January 17, 2011, Lisa Jones said…

Armit,

I just read that your son was diagnosed just 2 weeks ago. I am sorry for what you are going through. The PPMD community has been a huge source of support over the years. I know you will find the same support that we have.

At 8:13pm on January 17, 2011, Prasad Surampudi said…

Amit,

 

I have a DMD son of 15 years. If you need any help, please call me 908-281-8008

 

Prasad

 
 
 

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