Hello, dear amerdutt! My name is Marharita. I am from Ukraine. I have a son, who is ill with Duchenne. He is now 10.5 years old. Doctors diagnosed the illness at the age of 6.5 . In Ukraine, no one treats such children. Therefore, we are forced to travel to Israel each year to see a neurologist. There we learned how to swim in the pool, ride a horse, do special exercises (such as stretching) every day. For 2 years we have been able to stop the disease. But I would like to communicate with parents and doctors from another country that I could know how to carry to unusual style of life of the family with Duchenne`s disease. Please wrote me. Best, regard Marharita.
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Hello, dear amerdutt! My name is Marharita. I am from Ukraine. I have a son, who is ill with Duchenne. He is now 10.5 years old. Doctors diagnosed the illness at the age of 6.5 . In Ukraine, no one treats such children. Therefore, we are forced to travel to Israel each year to see a neurologist. There we learned how to swim in the pool, ride a horse, do special exercises (such as stretching) every day. For 2 years we have been able to stop the disease. But I would like to communicate with parents and doctors from another country that I could know how to carry to unusual style of life of the family with Duchenne`s disease. Please wrote me. Best, regard Marharita.