"Hi, Our boys are 15, both with genetically confirmed Duchennes. When they were in grade school we requested each of them to have a para-professional assigned to them for assisting with school work and toileting. When they became…"
ahmed Sayed Abdel Gawad's Discussions
entering the toilet
Started this discussion. Last reply by Melissa Chamness Feb 13. 1 Reply 0 Favorites
greetingsmy son now suffers when he wants to go to the toilet when he is in school. is there any ideas about facilitating this issue for him please. forexample does the electric standing wheel chair…Continue
foldable elecrtic wheel chair
Started this discussion. Last reply by Ashley Schea Nov 28, 2018. 2 Replies 0 Favorites
can anyone tell me which type of electric wheelchair is a good one for my 12 years old child. i need a light one which can be folded easily to be carried in the carthanks in advanceContinue
low back pain
Started this discussion. Last reply by Kathi Kinnett Feb 5, 2018. 1 Reply 0 Favorites
does anyone here know what should i do with my kid as he suffers from chronic low back pain.i mean is there any treatment that we should do for this issue.thanks so much for your helpContinue
deflazacort instead of corticosteriods
Started Sep 27, 2016 0 Replies 0 Favorites
hi all can anybody help me to get deflazacort for my 10 years old son instead of corticosteriods. knowing that i live iin Egypt.thanks very muchContinue
ahmed Sayed Abdel Gawad's Page
Latest Activity
ahmed Sayed Abdel Gawad posted a discussionentering the toilet
greetingsmy son now suffers when he wants to go to the toilet when he is in school. is there any ideas about facilitating this issue for him please. forexample does the electric standing wheel chair would help in such situations.thanks and best regardsSee More
Ashley Schea replied to ahmed Sayed Abdel Gawad's discussion foldable elecrtic wheel chair"We went with the EZ Lite Cruiser for our 8 year old. We had to modify it because he is a little small for it but would be perfect for a 12 year old. It's about 60 pounds and can be folded up and put in…"
Keith & Jill VE replied to ahmed Sayed Abdel Gawad's discussion foldable elecrtic wheel chair"We don't own one yet, but I have read good things about the EZ Cruiser Lite and the Airhawk. I will be following this thread to see other comments."
ahmed Sayed Abdel Gawad posted a discussionfoldable elecrtic wheel chair
can anyone tell me which type of electric wheelchair is a good one for my 12 years old child. i need a light one which can be folded easily to be carried in the carthanks in advanceSee More
StaffKathi Kinnett replied to ahmed Sayed Abdel Gawad's discussion low back pain
"Most low back pain is positional (sitting in unusual ways that put undue stress on muscles that may not be used to, or capable of, tolerating that stress. You should consult your rehabilitation team (physical therapist, physiatrist (Physical…"
ahmed Sayed Abdel Gawad posted a discussionlow back pain
does anyone here know what should i do with my kid as he suffers from chronic low back pain.i mean is there any treatment that we should do for this issue.thanks so much for your helpSee More
ahmed Sayed Abdel Gawad replied to Shawn's discussion Deflazacort no longer available in the US?"thank you so much sir"
ahmed Sayed Abdel Gawad replied to Shawn's discussion Deflazacort no longer available in the US?"please can you tell me from where did you order the deflazacort??? as i m in Egypt and i need to get for my son urgently.
thanks "
ahmed Sayed Abdel Gawad posted a discussiondeflazacort instead of corticosteriods
hi all can anybody help me to get deflazacort for my 10 years old son instead of corticosteriods. knowing that i live iin Egypt.thanks very muchSee More
Profile Information
- About me:
- i m father of a 7 years old boy with a duchenne with a point mutation.
- About my family:
- we are a family of 5 persons 3 children 2 boys and a daughter.
- Name(s) of child(ren)/individual(s) with Duchenne:
- hamza
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City:
- giza
Comment Wall
- No comments yet!
© 2019 Created by PPMD.
Powered by
Badges | Report an Issue | Privacy Policy | Terms of Service
