How you are doing now.
My Nephew diagnosed with DMD in 2016. He is on deflazacort and Co1 enzyme.
Should we go with steroids or Physio alone is enough.
Any idea, for the better treatment?
Ezutromid and Tamoxifen drugs are in clinical…"
"I'm not a parent with a child with dmd but I'm a 27 year old who has it. I've decided that I wanted to reach out and possibly give advice about my perspective of having this diseas to parents dealing with a recent diagnosis. I just…"
I'm a man who has muscular dystrophy who is interested in discussing specifics of what it's like to have dmd to parents who have a child who has been recently diagnosed. I feel like it's important to participate and give as much advice as I can and answer any questions.
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