Zachary Strobeck
  • Male
  • Warrenville, IL
  • United States
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  • Sai Chand. Gurujala
  • Ashley Nicole Dominguez
  • TW

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About me:
I'm a man who has muscular dystrophy who is interested in discussing specifics of what it's like to have dmd to parents who have a child who has been recently diagnosed. I feel like it's important to participate and give as much advice as I can and answer any questions.

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At 12:43am on March 11, 2017, TW said…

Thank you for reaching out.  My son is 10 and diagnosed a year  1/2 ago.  I would like to hear how you are doing.  

At 1:51pm on March 9, 2017, Sai Chand. Gurujala said…
Sorry to hear that, what medications you are taking .. how you are managing
At 11:34am on March 9, 2017, Sai Chand. Gurujala said…

Sorry to ask you Zachary,

How are you doing now,

Hope you are not on wheelchair.

At 5:27am on March 8, 2017, Sai Chand. Gurujala said…

Hi Zachary,

How you are doing now.

My Nephew diagnosed with DMD in 2016. He is on deflazacort and Co1 enzyme.

Should we go with steroids or Physio alone is enough.

Any idea, for the better treatment?

Ezutromid and Tamoxifen drugs are in clinical research. Will these drugs completely cure DMD?

Gene Theraphy also in trials. When this can be expected?

Everybody says life expectancy is very less. Is that true?

Please Share. Thank you.


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