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Will Nolan
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  • Bogota
  • United States
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Will Nolan's Discussions

 

Will Nolan, Communications & Administration Director

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City:
Bogota

Will Nolan's Blog

One Simple Action: Running for those who can’t

Posted on January 16, 2014 at 10:51am 0 Comments

A family of 11…9 kids (the youngest with Duchenne), 2 parents and ALL of them participated in last weekend’s Walt Disney World Marathon. Bob McDonald, a PPMD Board Member, and each member of his family ran in at least one of the Disney races.  Even his youngest son Mark, with Duchenne, participated via wheelchair. Everyone in the family took a little time and effort (okay, maybe a lot!) and did something to help end Duchenne.…



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Featured Voices of 2013

Posted on December 16, 2013 at 2:30pm 0 Comments

Each month for the last couple of years we have featured people with Duchenne who have made an impact on their community and our community in some significant way. Whether working with their parents to host a fundraising event, participating in a race, speaking in Washington, D.C., or sharing their story…

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My Voice: Ansel Lurio, 29 years old

Posted on November 15, 2013 at 10:00am 0 Comments

In a few weeks, PPMD will be hosting a Policy Forum on clinical trials of experiment agents This is a landmark meeting that will include participation from the FDA. It will also include Ansel Lurio, our Featured…

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My Voice: Jake Pritchard, 9 years old

Posted on October 15, 2013 at 11:30am 0 Comments

When a family hosts a fundraising event for Duchenne, we are thrilled and extremely grateful. When a family hosts the same event six years in a row, we are overwhelmed! This year the Pritchard family, along with their friends – Meghan and Jason Alpern – in Matthews, North Carolina will host the…

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My Voice: TJ Clime, 9 years old

Posted on September 16, 2013 at 1:04pm 0 Comments

On September 28, 2013, families across the country will celebrate PPMD's Sixth Annual Coach To Cure MD. Coaches from nearly 600 universities and colleges around the country will wear a Coach To Cure MD patch to help raise awareness for Duchenne. Hundreds of high school coaches (and entire teams!) will also support this amazing event. TJ Clime and his family suited up and started supporting Coach To Cure MD weeks ago. This incredible third grader and his family have been on the field and TJ…

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Comment Wall (5 comments)

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At 12:34pm on July 25, 2008,
Staff
Will Nolan
said…
Thank you so much Jenny for the sweet email! It was great getting to spend a little time with you and I can't wait to meet your boys soon. Maybe we could all do a Jersey playdate sometime with Kim's kids! Thanks again and thanks for all that you and Dan do for PPMD!
Will
At 9:41am on July 24, 2008, Jenny Garofalo said…
Hi Will,
your family is so awesome! that baby boy is soooo cute. he is very lucky to have you and Steve as such great/loving/caring parents. thanks for all you do for us!
Jenny
At 12:57am on July 21, 2008, Rhiannon Traigle said…
Will,
Thanks for all your hard work and a wonderful conference!
At 5:00pm on July 17, 2008, Gregory said…
My name is Greg, I am a 38 year old surviver of Duchenne muscular dystrophy. I emailed you because my passion in life is giving support to young adults with (DMD) or other disabilities to live life to the fullest and without boundaries.
I am looking forward to your reply.
At 3:10pm on June 9, 2008, Jacobs Mommom said…
Hi Will:
I just wanted to let you know that my relianceabstract email is down. My work computer crashed a week ago and it's still in the shop. Please use this or my other email to contact me if you need to.
 
 
 

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