Wilfredo Hernandez Rivera
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Wilfredo Hernandez Rivera's Friends

  • Jeferson Marques Machado
  • JUAN PEDRO ARBULU
  • Leslie Guzman
  • Ofelia Marin

Wilfredo Hernandez Rivera's Groups

Wilfredo Hernandez Rivera's Discussions

Prosensa Clinical Development Plan Update

Started May 24, 2011 0 Replies

Prosensa is currently conducting a clinical study to investigate the effect of PRO044 in boys with Duchenne muscular dystrophy, who have a dystrophin gene mutation amenable to an exon 44 skip.…Continue

Daily pill for Duchenne muscular dystrophy

Started this discussion. Last reply by arnold May 5, 2011. 1 Reply

A new drug for the muscle-wasting disease Duchenne muscular dystrophy has shown significant benefits in mice, opening the door for clinical trials…Continue

Tags: C1100, SMT

Recent AVI-4658 trial results have positive outcome

Started Nov 4, 2010 0 Replies

Results from the recent AVI-4658 study have been positive so far and are now awaiting further analysis in America by the sponsor AVI BioPharma. Two families that have participated in the trial in the…Continue

 

Wilfredo Hernandez Rivera's Page

Latest Activity

Wilfredo Hernandez Rivera favorited Pat Furlong's blog post At Long Last, A Victory!
Apr 21, 2014
Wilfredo Hernandez Rivera is attending PPMD's event
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Clinical Trials in Duchenne: A Behind the Scenes Look at Eastern Time Zone

December 19, 2013 from 1pm to 2pm
Understanding clinical trials can be complicated to say the least. On December 19, PPMD hosted a webinar to give you a “behind-the-scenes” look into what goes into planning a successful clinical trial in Duchenne. Discussion topics included challenges faced, best practices, new ideas, etc.Featured guestsHalo…See More
Dec 18, 2013
Wilfredo Hernandez Rivera shared Kathi Kinnett's blog post on Facebook
Nov 23, 2013
Wilfredo Hernandez Rivera favorited Michelle Gonzales's discussion BULLYING / THREATENING
Apr 10, 2013
Wilfredo Hernandez Rivera favorited Jason Darienzo's discussion Eteplirsen Demonstrates Sustained Benefit on Walking Test Through 74 Weeks
Apr 7, 2013
Wilfredo Hernandez Rivera favorited Moein's discussion Can A 8 Year Old Child Be Given Adult Multi-Vitamin ?
Apr 7, 2013
Yesenia Villasenor left a comment for Wilfredo Hernandez Rivera
"Gracias Wilfredo,   I have to get familiar with the website.  I may have more time to familiarize myself next week sunday.  Thank you for welcome me to the group. "
Jan 9, 2012
Wilfredo Hernandez Rivera favorited Rita Felling's blog post trust in Jesus
Jan 2, 2012
Jeferson Marques Machado left a comment for Wilfredo Hernandez Rivera
"Hello, my name is Jefferson and DMD have, as I do to be able to talk to you? Excuse my way of speaking but I need to talk to someone who can help me. I am new to this networking site and do not know how to use it perfectly. I am using google…"
Nov 11, 2011
Jeferson Marques Machado and Wilfredo Hernandez Rivera are now friends
Nov 8, 2011
Wilfredo Hernandez Rivera joined Leslie Guzman's group
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UPA! Familias que hablan Espanol

This group is for spanish speaking DMD/DMB families. Este grupo es para familias que hablan espanol. UPA!See More
Sep 22, 2011
Wilfredo Hernandez Rivera favorited Tulika's discussion IS this the large animal study that muscle regeneration was waiting for
Sep 21, 2011
Wilfredo Hernandez Rivera favorited Pat Furlong's blog post update from Dr. Ceradini- Parent Project Italy
May 27, 2011
Wilfredo Hernandez Rivera posted a discussion

Prosensa Clinical Development Plan Update

Prosensa is currently conducting a clinical study to investigate the effect of PRO044 in boys with Duchenne muscular dystrophy, who have a dystrophin gene mutation amenable to an exon 44 skip.http://www.actionduchenne.org/viewarticle?news=187See More
May 24, 2011
Wilfredo Hernandez Rivera posted a discussion

Daily pill for Duchenne muscular dystrophy

A new drug for the muscle-wasting disease Duchenne muscular dystrophy has shown significant benefits in mice, opening the door for clinical trialshttp://www.ox.ac.uk/media/news_stories/2011/110505_1.html See More
May 4, 2011
Wilfredo Hernandez Rivera posted a discussion

Recent AVI-4658 trial results have positive outcome

Results from the recent AVI-4658 study have been positive so far and are now awaiting further analysis in America by the sponsor AVI BioPharma. Two families that have participated in the trial in the UK share their experiences. http://www.actionduchenne.org/duchennepedia/article/229/recent-avi-4658-trial-results-See More
Nov 4, 2010

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Alejandro David Hernandez Mendez
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Aguadilla Puerto Rico

Comment Wall (2 comments)

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At 1:54pm on January 9, 2012, Yesenia Villasenor said…

Gracias Wilfredo,  

I have to get familiar with the website.  I may have more time to familiarize myself next week sunday.  Thank you for welcome me to the group. 
At 10:52am on November 11, 2011, Jeferson Marques Machado said…

Hello, my name is Jefferson and DMD have, as I do to be able to talk to you? Excuse my way of speaking but I need to talk to someone who can help me. I am new to this networking site and do not know how to use it perfectly. I am using google translator, if you can speak in Spanish.

 
 
 

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