Wendy St.Geme
  • 48, Female
  • Sacramento
  • United States
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Wendy St.Geme's Discussions

Funding for equipment

Started this discussion. Last reply by Susan Rathfelder Apr 22, 2010. 1 Reply

Website!

Started this discussion. Last reply by Wendy St.Geme Sep 8, 2008. 3 Replies

Stretching video

Started this discussion. Last reply by Lee Ann Faeth Aug 9, 2008. 1 Reply

 

Wendy St.Geme's Page

Profile Information

About me:
I am a working mom with two biological sons and one step-son –all very wonderful boys! I have been married to my husband, Paul, for 10 years. We live in Sacramento, close to my parents, who are our biggest support. They take care of our boys while we are away at work or otherwise. My mom has started making glass jewelry to support DMD. Learn more at www.racinwithnathan.com
I am employed by a fantastic employer in Rancho Cordova called VSP.
About my family:
Nathan is age 10 and was diagnosed with DMD at age 4. We kept telling our pediatrician that something wasn't right. He had a very hard time getting up even a small step. She thought it was just because he broke his femur when he was two. At his 4 yr check-up, I was more aggressive with the fact that something wasn't right! Well, unfortunately, we were right! She mentioned testing him for "muscular dystrophy" but we had no clue what that was. When we got home my husband googled it and, needless to say, we were terrified! Nathan is the coolest kid ever!
We sometimes have to put our foot down and make him stay home with us occasionally because our friends and family constantly want to take him places with them. My friends that have children that are all grown up are taking him ato the movies and dinner, etc. Our youngest son, Josh, is age 5 and has Opitz syndrome. Opitz is a syndrome that affects his facial features by having wide-spaced eyes and a large widow’s peak. . He has some respiratory problems, but seems to be getting better with age. He is a ton of fun and has enough energy for the whole family! My ste-pson, Matthew, is a delight. He is VERY smart amd LOVES baseball - A huge Mets fan! We have Matthew with us once a week and every other weekend. It can get wild around here when all three boys are together!
Name(s) of child(ren)/individual(s) with Duchenne:
Nathan
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Sacramento

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Wendy St.Geme's Blog

Fundraising for individual needs of child with Muscular Dystrophy

Posted on March 13, 2013 at 7:05pm 2 Comments

Does anyone have advice about fundraising for individual needs i.e. house modification for wheelchair; bathroom, tracking, etc? We want people to be able to write off donation, and us not have to pay taxes on what is raised.Any suggestion on a non-profit organization that might allow us to raise money under their umbrella? Or some other avenue?

Comment Wall (39 comments)

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At 6:07pm on August 8, 2010, Julie said…
I think we just say you at mad camp. Aiden and Nathan are in the same cabin.
At 8:18pm on August 7, 2009, Julie said…
Glad he is doing good. Hope he can hold off on the wheel chair. Yes all motor bikes and cars if they want. We just want to raise as much as possible to end duchenne. They can just come for the tri-tip BBQ lunch for $10.00 a person too. Hope to see you and Nathan there.
Julie
At 12:04pm on August 7, 2009, Julie said…
Hi Wendy- yes we are doing a poker run again this year. We plan to do it every year. I will talk to my husband a see if we can make it 8-29. Hope everything is going well and Nathan is doing good. Aiden has been swimming all summer and doing very well. Talk to you soon. Tell your friends who ride motor bikes to come too.

Julie
At 11:21am on February 1, 2009, Evonn Balcziunas said…
Hi Wendy,

We'd definitely be interested in getting together sometime. It would be great for our son to have other kids his age with DMD to connect with. We would be happy to make a road trip so perhaps we can plan something.
At 2:27am on January 28, 2009, Evonn Balcziunas said…
Dunno for sure. Your local MDA office would know more about that. I don't know how many camps they offer in the summer and where they are. There might be a camp nearer to you. The camp in Occidental was the closest one to us. So I kind of assumed it might be a camp for most No. Cal families. But it sounds like maybe you're looking to hook up with someone who would go to the same MDA camp as your son?
At 7:56pm on January 27, 2009, Wendy St.Geme said…
Is that for Bay area residents only? Do you know how they determine who goes where?
At 7:13pm on January 27, 2009, Evonn Balcziunas said…
Occidental to be precise.
At 7:12pm on January 27, 2009, Evonn Balcziunas said…
The camp is in Sonoma. http://www.westminsterwoods.org/
At 12:08am on December 4, 2008, Kulwant Pannu said…
Hi Wendy. It sure has been a while. I thought I'd stop by and say hello and see how things were going with you. Hope all is well. Happy Holidays!
At 3:05pm on September 15, 2008, Wendy St.Geme said…
I really enjoyed meeting you all as well. You have a beautiful family! Nathan couldn't stop talking about how great it was to meet Aiden! My husband was bumbed that he wasn't there. Maybe we could meet half way for luch/picnic/play date in a park, whatever! Let me know when you have some time on a weekend.
 
 
 

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