Wendy Kelly
  • Female
  • Garrett, PA
  • United States
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Wendy Kelly's Discussions

Sarepta Phase III???

Started this discussion. Last reply by Richard Darienzo Mar 7, 2014. 5 Replies

Any news on when Sarepta is going to start a confirmatory phase III.  All of this waiting around on the FDA to give them their blessing is really dragging me down!  Why not do the confirmatory trial…Continue


Started this discussion. Last reply by Michelle Diamond Jan 23, 2014. 3 Replies

Any suggestions on how to keep their feet from sweating in the night braces?  We even bought the "sock liners" that were recommended from the PT.  Nope.... still sweaty!  Was thinking of maybe little…Continue

Deflazacort Dosage

Started this discussion. Last reply by Andrea Cleary Jan 19, 2014. 7 Replies

I was wondering about what the dosage was for the deflazacort.  We are currently 21 mg.  My son is 6 yrs old and is 48 inches tall and about 42 lbs.  Any thoughts?  What is everyone else is doing as…Continue


Wendy Kelly's Page

Profile Information

About me:
Mom, realtor, cook, maid, butler, doctor, keeper of the peace, driver, wife, sister, daughter, granddaughter, etc...
About my family:
Two boys ages 13 and 6. Husband who is 40 but acts 13 sometimes. Youngest son with duchenne.
Name(s) of child(ren)/individual(s) with Duchenne:
Jackson Kelly
Age(s) of child(ren)/individual(s) with Duchenne:

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