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Vee Lail's Page

Latest Activity

Profile IconKelly Bruhl and Joanne Haswell joined Vee Lail's group
Feb 19
Anup Kalra joined Vee Lail's group
Feb 8
Geraldine Coolidge favorited Vee Lail's group Canadian Families
Jan 26
Geraldine Coolidge joined Vee Lail's group
Jan 23
Jennifer commented on Vee Lail's group Canadian Families
"Andrew, We have been contributing since they started the RDSP.  I believe last year they told me that they would allow me to catch up for previous years if need be, so you can look into that as well."
Jan 3
Andrew Kerr commented on Vee Lail's group Canadian Families
"Jennifer, I remembered hearing that was a planned changed, but never heard if it had gone through or not.  Glad to hear it has.  It might be time for us to start contributing to one for our boys."
Jan 3
Jennifer commented on Vee Lail's group Canadian Families
"I believe there has been a change to the RDSP situation in Canada: Contribute to a Registered Disability Savings Plan This vehicle allows people to put a lifetime limit of up to $200,000 into a tax-sheltered plan. "New for 2011, RDSP holders…"
Jan 2
Char Burke commented on Vee Lail's group Canadian Families
"Question for my Canadian compatriots - is anyone in the clinical trial with GSK out of Vancouver and what kind of access to meds after the trial is over?  Thanks Char Burke"
Jan 1

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Shaan
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City and State:
Richmond, BC
Country:
Canada
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Comment Wall (19 comments)

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At 8:30pm on February 3, 2011, Perlita & Gordy Hains said…
hey stranger - how have you been?  are you attending Balt. conference?  We are as it's on 2 hrs from home by car.  Have you made any decisions regarding accessible home? keep in touch   xoxo  perlita
At 2:04pm on July 30, 2010, Perlita & Gordy Hains said…
Vee - thanks for the kind words. I am happy to answer ques or guide you in any way I can. Basically NO STEPS, wide doorways, pocket doors, elevator closet area (we aren't installing now as Levi is only 3), but having the area structurally ready for elevator! My brother in law is an Architect in Washington DC and designed the home for us. contact me anytime:)

perlita
At 5:13pm on July 14, 2010, raman grover said…
Hi Vee,

hi, how are you, yes i did find deflazacort, thanks for asking.

i guess it is a coincidence that our son's name are almost the same. It was nice to meet you at the meeting, i felt really comfortable talking to you. I hope one day we introduce ours children to each other, that will be great. I will love to come and visit you in Vancouver one day for the holidays.

thanks and talk to you soon,

Raman
At 5:05pm on March 5, 2010, Marija Bucevska said…
Thank you Vee
At 5:01pm on December 5, 2008, steve beaulieu said…
Vee, we are coming back to Vancouver this Sunday - dec. 7th. We will be at Easter Seal Sunday night - We'll try to call you...

Hope to talk soon, Michelle
At 2:13am on October 15, 2008, brad stringer said…
Hi Vee and Kelly,

how did the US clinic visit go for you all?

Brad
At 9:39am on October 7, 2008, brad stringer said…
Hi Vee,
I hope their trip goes well. just wondering...what can you tell me about the phase 2a extension study procedure, as I am wondering what will happen if we decide to participate in the 2b trial and then the 2b extension study. What is the follow-up that will be required in terms of tests, and for how long? any idea?
Also, please feel free to email me when you would like to discuss PPMD Canada and how I can help you and Kelly with setting up.
Best, Brad- stringerimages@shaw.ca or call 604-728-3091
At 8:58pm on October 6, 2008, brad stringer said…
Hello Vee and Kelly...

It was good to meet you both this past Saturday at BC Childrens for the PPMD Round Table. The speakers were all outstanding and it was nice to connect with a few local family members too.
Oh yes, the Indian food at lunch was outstanding!
As I promised, I want to talk with you as you start up PPMD Canada and see where I might be of use. Please let me know when we can "sit down" and discuss how I can join your efforts.
Regards, Brad Stringer...North Van.
At 8:26pm on August 15, 2008, Angela said…
It was great hangin' out with you guys in SLC!!! I sure enjoyed finally meeting Kelly and Shaan. I look forward to talking often over then next few months!
Ang :)
At 11:48am on August 10, 2008, Jill Castle said…
How did it go? Email me and let me know. Jill@connectourkids.com

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