it's hard not to be fiercely proud of our boys, isn't it? I know James is the light of my life and, whilst I have two beautiful girls whom I totally adore, I am also more protective of James and continually worrying about him. I know my girls are fine, but James? He just needs more "shadowing" by one of us.
As I've said before, Jeffrey is such a handsome boy and with those eyes he is going to be popular with the girls! (if he isn't already). He is doing so well, going to school without a motor scooter and being as active as he looks. I hope my son will be just as able when he is 11, though lately he seems to be having more and more difficulty doing things. Just last night Julian made a comment about how much tighter his legs have become and how he's having difficulty putting on his underwear and pants, and I think I ended up crying myself to sleep. It's unfair how we can't go through even one day without thinking about the fact he has DMD. I have just ordered James a book, Weakling Willie, as I feel we are nearing the time where we have to explain why he is having trouble doing things, something I have been dreading but needs to be done.
Anyway, sorry to ramble. Today isn't a good day, I suppose we all have good and bad days in the DMD world. We have also found out we are moving to London in the next few weeks, so my mind is racing at a million miles an hour, trying to think of all the things that need to be done.
It was lovely to hear from you - I am sure we will get to know each other better on this site.
You are welcome for the welcome! Your boy Jeffrey is handsome also. I too am very involved in the MDA but love the PPMD Community Board. MDA and PPMD have so many great things to offer. I just realized your spelling of your name is just like my next door neighbor which honestly was the first time I had ever seen it. I love the different spelling-it is cool!