"Dear Sulthana Shaik
If have any chance to save your kids , go ahead. I am always wish all the best to your son
My son also need exon 45 & 51 skipping but I am in Viet Nam , dont have chance for any trial and I dont know who to contact to get the…"
I am 35 years old . I am a working Mom. To me family is a must priority and I love my family so much.
About my family:
I and my husband have 4 children, 3 girls and 1boy, My family is a really full of laughter house with our smart, lovely, and obedient children. I have a fond happy life till the day of October 15 2013, I found out the CPK of my son, third baby, is over 21,000 IU , a sign of duchene disease and now I know this is the main cause of the death for my two oldest brother. This is the heart-breaking memory of my childhood. I am still waiting the gene checking result from the doctor and from now on our life is mixed up with this huge project. I am sure to be stronger Mom to do everything best for my son. My dear little boy! Be a good boy! Thanks you
Name(s) of child(ren)/individual(s) with Duchenne: