PPMD Community

Tuyet Lan Thi Tran
  • Female
  • Sai Gon, Viet Nam
  • Vietnam
Share on Facebook
Share

Tuyet Lan Thi Tran's Friends

  • juan banuelos
  • Slaven Pasalic
  • Ann Martin
  • Trinh Nguyen
  • David
  • Pat Furlong
  • Lori Ware
 

Tuyet Lan Thi Tran's Page

Latest Activity

Tuyet Lan Thi Tran commented on PPMD's group Deletions
"Dear All Can anyone help me by le me know what exon skip for 46-50 deletion if you are have all experience about that. My son is now 3.5 years old.  "
Jul 26, 2014
Tuyet Lan Thi Tran replied to Rahul Deshpande's discussion Deletion of exon 44 in the group Deletions
"Hello pls advise whether exon skip of 45 is for duchene delete 46-50 ? thanks "
Jul 26, 2014
Tuyet Lan Thi Tran favorited Jason Darienzo's discussion Whitehouse petition: Urge the FDA to Say YES to Accelerated Approval for children with Duchenne.
Mar 24, 2014
Tuyet Lan Thi Tran favorited Yanbin Hua's discussion eteplirsen maybe a successful drug!
Feb 10, 2014
Tuyet Lan Thi Tran joined PPMD's group
Dec 3, 2013
Tuyet Lan Thi Tran commented on Tuyet Lan Thi Tran's status
"Hi David, thanks, but would you pls help me for more detail as now I dont know where to start for my son , 3 years old, have any website for Sarepta and Prosensa testing for my reading to easy understanding."
Nov 26, 2013
Trinh Nguyen favorited Tuyet Lan Thi Tran's photo
Nov 10, 2013
Tuyet Lan Thi Tran posted photos
Nov 8, 2013
Tuyet Lan Thi Tran commented on RAKTIM SINGH's group exon 46-50 deletion
"Dear All I live in Viet Nam, I just join this PPMD Comunity . I have 1 boy who under the genetic checking, not yet get the result. But my older sister have 1 boy with exon 46-50 deletion. pls advise whether have any trial clinic for this kind of…"
Nov 5, 2013
Tuyet Lan Thi Tran joined RAKTIM SINGH's group
Thumbnail

exon 46-50 deletion

For group of families having exon 46 to 50 deletion.
Nov 5, 2013
Tuyet Lan Thi Tran is now a member of PPMD Community
Nov 4, 2013

Profile Information

About me:
I am 35 years old . I am a working Mom. To me family is a must priority and I love my family so much.
About my family:
I and my husband have 4 children, 3 girls and 1boy, My family is a really full of laughter house with our smart, lovely, and obedient children. I have a fond happy life till the day of October 15 2013, I found out the CPK of my son, third baby, is over 21,000 IU , a sign of duchene disease and now I know this is the main cause of the death for my two oldest brother. This is the heart-breaking memory of my childhood. I am still waiting the gene checking result from the doctor and from now on our life is mixed up with this huge project. I am sure to be stronger Mom to do everything best for my son. My dear little boy! Be a good boy! Thanks you
Name(s) of child(ren)/individual(s) with Duchenne:
Anh Lam Vu Dang
Age(s) of child(ren)/individual(s) with Duchenne:
0-3
City:
Ho Chi Minh
State:
Sai Gon, Viet Nam

Tuyet Lan Thi Tran's Photos

  • Add Photos
  • View All

Comment Wall

You need to be a member of PPMD Community to add comments!

Join PPMD Community

  • No comments yet!
 
 
 

© 2017   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service