Tulika
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Latest Activity

Corinne King replied to Tulika's discussion Deletion of Exon 50
"Hi there, my sons have a deletion of Exon 50 also. I also would love for them to be on the trial for Prosensa, but we are in NZ. I am looking into it though. Exon skipping should help our boys, its actually what keeps me going. I started a group on…"
Mar 27, 2015
Tulika favorited Tulika's discussion simple and elegant description for a stem cell cure
Sep 25, 2013
Tulika favorited Tulika's discussion simple and elegant description for a stem cell cure
Sep 25, 2013
Tulika replied to Tulika's discussion simple and elegant description for a stem cell cure
"My understanding is that Helen is saying that creating dystrophin is not the end state. That will work only in the initial an young age children before the heavy demand on the muscle stem cells causes the Telomeres to shorten.  First paper in…"
Sep 25, 2013
Jason Darienzo replied to Tulika's discussion simple and elegant description for a stem cell cure
"I think this new mouse model should be recommended by PPMD and the MDA as the primary model for DMD.     Here is the discission on ppmd from 2 years ago on Helen Blau's…"
Sep 24, 2013
amit gupta replied to Tulika's discussion simple and elegant description for a stem cell cure
"tulika, helen blau told about the new mouse model over 2 years ago...this was discussed here as well.."
Sep 24, 2013
Tulika posted a discussion

simple and elegant description for a stem cell cure

I strongly recommend this video. At least it lifted me out of the gloom I had got from the Prosensa news. 45 minute description on how to create the disease in a mouse model and then how to fix it too. This lady from Stanford is very close.http://cirmresearch.blogspot.nl/2013/09/new-video-spotlight-on-muscular.htmlSee More
Sep 21, 2013
Tulika posted a discussion

Exon Skipping with AAV (its there even for duplications)

To me this paper sounds like its 2008 but with a single injection. Lot more efficacy over the current weekly dosing regime. http://www.sciencedirect.com/science/article/pii/S0960896613008766In 2008 we first saw the videos of GRDM models seeing the benefits of exon skipping, and now 5 years later we are almost on the verge of large scale trials for different exon skipping. The above paper talks about 21 GRDMs models…See More
Sep 18, 2013

Profile Information

Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Amsterdam

Tulika's Blog

My dose of hope for today

Posted on September 30, 2011 at 1:53am 2 Comments

53 minutes on a horrible medical issue, but talks about almost all the issues I think about as a Duchenne Parent.

 

http://www.youtube.com/watch?v=-EJBMc9HxtQ&feature=player_embedded#!

 

There is hope

Path to Mars: Possible with Duchenne cure

Posted on July 6, 2011 at 5:11pm 4 Comments

This is just a speculative thought which I have compiled after going through my daily life on Google Search engine





First about the trip to Mars. In today's world its estimated that a human trip to Mars will be about 3 years. It will take about 8 to 9 months to go to Mars, spending about a year on Mars and then again about 9 months back.





So how does it connect with Duchenne.



We know from the time astronauts have spent in space that, in a micro gravity…

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At 3:01am on October 3, 2011, RAKTIM SINGH said…

 Hi Parth,

 Sorry for replying late. I was on leave last week. Ashok is not in Infosys.I guess you are talking of Ashok Laishram.

 

Raktim

At 4:44pm on November 15, 2009, Melissa Engstrom said…
That would be great. Thank you. I am looking into it as well, as I think that is the future.
At 10:04am on November 15, 2009, Melissa Engstrom said…
Tulika, I read your comment regarding the stem cell treatment, Do you know anyone who is in or had the treatment?
At 11:58pm on March 1, 2009, Kulwant Pannu said…
Tulika,
Can you please forward me the Basic Information Form so that I can have it sent to the New Delhi lab for the stem cell treatment in China. My mom is contacting the lab today and is setting up a time to meet with them later this week but I need to get the paperwork to them. You can email it to me at
kpannu.subway@gmail.com you can also contact me on my cell phone at 916-205-8329 if you have any questions. Thank you. Kulwant.
 
 
 

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