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Tulika replied to Amrit's discussion Halo
"David,  I am seeking out for the details on "HT-100 works by inhibiting the pathological fibrotic process in muscle and directly stimulating healthy muscle fiber regeneration" No clue how is this achieved. Looks like for this time…"
Thursday
David replied to Tulika's discussion Worlds first approved stem cell treatment
"Ah...ok I get it. Or more to the point, I have some weekend reading to learn what EAP is and how it works."
May 18
Tulika replied to Tulika's discussion Worlds first approved stem cell treatment
"EAP is "investigational drug outside of a clinical trial by patients with serious or life-threatening conditions who do not meet the enrollment criteria for the clinical trial in progress" This is not rights for commercial…"
May 18
David replied to Tulika's discussion Worlds first approved stem cell treatment
"The article is confusing.   It states "First approved treament" and yet it also states "Prochymal is currently available in several countries, including the United States, under an Expanded Access Program"   If it is…"
May 18
Rupjani B replied to Tulika's discussion Worlds first approved stem cell treatment
"Hi  Tulika,Thanks for posting this.Hope, very soon you will post an article with tag like this:'stem cell therapy for DMD'. Interesting point is that, this drug is an intravenous formulation of mesenchymal stem cells (MSCs), which are…"
May 18
Tulika posted a discussion

Worlds first approved stem cell treatment

Though it's not for DMD the key point to note is that approval is given for kids who are not responding to steroids. The company is obligated to continue clinical trials while those left with no option can get the stem cells even while trials are ongoing.This is how terminal diseases should be dealt with. Not taking decades while generation of kids are fodder for the FDA process.…See More
May 17
4 Comments
Tulika posted a discussion

AAV + Exon skipping in Canine models

Now we have canine studies on AAV delivering the exon skipping drug. I see this step as a major boost in the delivery efficiency of exon skipping drugs. Hopefully this is as dramatic as the canine videos that came out in 2008 demonstrating the working on exon skipping. MRI roadmap-guided transendocardial delivery of exon-skipping recombinant adeno-associated virus restores dystrophin expression in a canine model of Duchenne muscular dystrophy.these results demonstrated that effective…See More
May 12
0 Comments
Tulika posted a discussion

Vaccination along with GSK Prosensa Trial!

My son is scheduled for the BMR and DTP vaccination tomorrow. He is participating in the GSK trial and is getting the real medicine now. I was just curious to know whether there are any side effects of getting the vaccination done along with having the GSK trial medication. Has anyone done it before?See More
Mar 15
0 Comments

Profile Information

Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City and State:
Amsterdam
Country:
Netherlands

Tulika's Blog

My dose of hope for today

Posted on September 30, 2011 at 1:53am 2 Comments

53 minutes on a horrible medical issue, but talks about almost all the issues I think about as a Duchenne Parent.

 

http://www.youtube.com/watch?v=-EJBMc9HxtQ&feature=player_embedded#!

 

There is hope

Path to Mars: Possible with Duchenne cure

Posted on July 6, 2011 at 5:11pm 3 Comments

This is just a speculative thought which I have compiled after going through my daily life on Google Search engine





First about the trip to Mars. In today's world its estimated that a human trip to Mars will be about 3 years. It will take about 8 to 9 months to go to Mars, spending about a year on Mars and then again about 9 months back.





So how does it connect with Duchenne.



We know from the time astronauts have spent in space that, in a micro gravity…

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At 3:01am on October 3, 2011, RAKTIM SINGH said…

 Hi Parth,

 Sorry for replying late. I was on leave last week. Ashok is not in Infosys.I guess you are talking of Ashok Laishram.

 

Raktim

At 4:44pm on November 15, 2009, Melissa Engstrom said…
That would be great. Thank you. I am looking into it as well, as I think that is the future.
At 10:04am on November 15, 2009, Melissa Engstrom said…
Tulika, I read your comment regarding the stem cell treatment, Do you know anyone who is in or had the treatment?
At 11:58pm on March 1, 2009, Kulwant Pannu said…
Tulika,
Can you please forward me the Basic Information Form so that I can have it sent to the New Delhi lab for the stem cell treatment in China. My mom is contacting the lab today and is setting up a time to meet with them later this week but I need to get the paperwork to them. You can email it to me at
kpannu.subway@gmail.com you can also contact me on my cell phone at 916-205-8329 if you have any questions. Thank you. Kulwant.
 
 
 

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