• Male
  • Tewksbury, MA
  • United States
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TW's Friends

  • Zachary Strobeck
  • Sai Chand. Gurujala
  • Jeffrey Kopp

TW's Page

Latest Activity

TW joined PPMD's group
Jun 24, 2020
TW joined PPMD's group
Jun 24, 2020
TW favorited Manish Sawhney's group DUPLICATION in DMD
Jun 24, 2020
TW joined Roxanne's group

Outliers - Intermediate between Duchenne & Becker MD

The reading frame rule holds true 90% of the time. There remains those 10% that does not fit dmd/bmd phenotype. There is a 3rd form that may be considered as an intermediate between Duchenne and Becker MD(mild DMD or severe BMD.See More
Jun 24, 2020
TW joined Anthony DeVergillo's group
Jun 24, 2020
TW replied to Jeffrey Kopp's discussion Duchenne Boy Looking for PlayStation Buddies to Play Games With
"Hi,     Did Liam change his username? My son tried friending him on the PS4 and it didn't work.  My son is named Mike. His username is Mighty_Mike_23 on the PS4 if he wants to friend him."
Jun 24, 2020

Profile Information

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Age(s) of child(ren)/individual(s) with Duchenne:

Comment Wall (3 comments)

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At 12:49pm on March 11, 2017, Zachary Strobeck said…
Hello there, I'm sorry to hear about your sons diagnosis but it's good to know that there are a lot more options available to extend our lives. I'm doing pretty okay as far as the progression of the disease goes. Overall, I feel like I'm doing well, a lot of that has to do with the fact that I see a cardiologist and pulmonologist who understand dmd. It's super important to maintain the most important muscles. If you ever want to keep in touch you are welcome to email me at
At 4:11am on February 28, 2017, Sai Chand. Gurujala said…

Hi Wright,

He is 9 years. He is on deflazacort and Co Enzyme.

Walking well, Difficulty in using stairs and getting up on floor. No falls, very active.

Yes, Heard Tamoxifen is good but it is still in trails. It may come to market in 2019.

Does Tamoxifen cures completely?

What supplements your son is taking. Please share.

Thank you Wright.

At 10:15am on February 27, 2017, Sai Chand. Gurujala said…

Hi Wright,

How is your Son doing.


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