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T. Wright
  • Male
  • Oak Island, NC
  • United States
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T. Wright's Friends

  • Zachary Strobeck
  • Sai Chand. Gurujala
 

T. Wright's Page

Latest Activity

T. Wright joined PPMD's group
Mar 12
Zachary Strobeck left a comment for T. Wright
"Hello there, I'm sorry to hear about your sons diagnosis but it's good to know that there are a lot more options available to extend our lives. I'm doing pretty okay as far as the progression of the disease goes. Overall, I feel like…"
Mar 11
Sai Chand. Gurujala left a comment for T. Wright
"Hi Wright, He is 9 years. He is on deflazacort and Co Enzyme. Walking well, Difficulty in using stairs and getting up on floor. No falls, very active. Yes, Heard Tamoxifen is good but it is still in trails. It may come to market in 2019. Does…"
Feb 28
Sai Chand. Gurujala left a comment for T. Wright
"Hi Wright, How is your Son doing."
Feb 27
T. Wright joined Danielle Bath's group
Feb 16
T. Wright joined Michelle's group
Feb 13
T. Wright joined Eileen DeLong's group
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NEW ENGLAND FAMILIES

A PLACE FOR FAMILIES FROM NE TO MEET
Feb 13
T. Wright joined Manish Sawhney's group
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DUPLICATION in DMD

To bring closer the families with DUPLICATION which is Rare-most of all DMD mutations.
Feb 13
T. Wright joined PPMD's group
Feb 13
T. Wright is now a member of PPMD Community
Jan 3, 2016

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Mike
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Oak Island
State:
NC

Comment Wall (3 comments)

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At 12:49pm on March 11, 2017, Zachary Strobeck said…
Hello there, I'm sorry to hear about your sons diagnosis but it's good to know that there are a lot more options available to extend our lives. I'm doing pretty okay as far as the progression of the disease goes. Overall, I feel like I'm doing well, a lot of that has to do with the fact that I see a cardiologist and pulmonologist who understand dmd. It's super important to maintain the most important muscles. If you ever want to keep in touch you are welcome to email me at zstrobeck@gmail.com
At 4:11am on February 28, 2017, Sai Chand. Gurujala said…

Hi Wright,

He is 9 years. He is on deflazacort and Co Enzyme.

Walking well, Difficulty in using stairs and getting up on floor. No falls, very active.

Yes, Heard Tamoxifen is good but it is still in trails. It may come to market in 2019.

Does Tamoxifen cures completely?

What supplements your son is taking. Please share.

Thank you Wright.

At 10:15am on February 27, 2017, Sai Chand. Gurujala said…

Hi Wright,

How is your Son doing.

 
 
 

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