Trinh Nguyen
  • Female
  • Saigon
  • Vietnam
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Trinh Nguyen's Discussions


Started this discussion. Last reply by Trinh Nguyen Jan 20, 2016. 8 Replies

We still cannot order Deflazacort from Master UK like before. They request us to give import license. We have had to buy through other link: . But we are not sure about…Continue

Deflazacort from UK

Started this discussion. Last reply by Richard John Elder Jul 31, 2015. 3 Replies

I have ordered Deflazacort from UK through Master for 4 years. But now suddenly, they request License from Pharmacy. In our country only big pharmaceutical company can import meditation (The…Continue


Started this discussion. Last reply by wainaina muiruri Dec 10, 2014. 6 Replies

Hi everybody!PTC announces launch of Translarna in Germany. How can Duchenne boys from other countries approach? Can ppmd help?Tks/Trinh…Continue

Power chair

Started this discussion. Last reply by Trinh Nguyen Aug 27, 2014. 11 Replies

Hi, my son is 10 and getting more difficult in walking. We are going to buy power chair for my boy. Anyone can give me some advice of the suitable brand. Much thanks.Trinh Continue


Trinh Nguyen's Page

Profile Information

About me:
I live in Vietnam. I am a working mom. My family is my most precious gift.
About my family:
My husband and I have two children. Our daughter is smart, creative and earnest ; our son is a very lovely and cheerful boy. Our life was pretty nice so far, until we got to know that my son got DMD. It's so hard for us to deal with this disease but I pray we will be always together and can do the best for our son in this tough journey.
Name(s) of child(ren)/individual(s) with Duchenne:
Thuc Nguyen
Age(s) of child(ren)/individual(s) with Duchenne:
Ho Chi Minh City

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Comment Wall (18 comments)

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At 1:16pm on February 8, 2016, Andrea Cleary said…

Happy New Year Trinh to you and the family.

Let's see what Monkey business this year brings!


At 1:19pm on October 29, 2014, Dennis Le said…

I will certainly share what I learn after the trip to see Dr. Wong.  Have a great day.

At 12:26pm on October 15, 2014, Dennis Le said…

Hi Trinh,


Certainly.  I am looking forward to connect with you.  Which district are you in Saigon?

At 4:10pm on October 8, 2014, Dennis Le said…

Hi Trinh,

Yes I am. 

At 2:35am on September 4, 2013, Doan Nguyen Xuan said…

Thank u, I hope DMD Vietnam connect with the world community DMD

At 2:08am on September 4, 2013, Doan Nguyen Xuan said…

Hi chị Trinh,

Em đã được kích hoạt thành viên chính của PPMD rồi à.

At 6:40am on August 2, 2011, Andrea Cleary said…

Thank you Trinh, I will tell Simon that you wish him a happy birthday all the way from Vietnam! He will be excited to hear that.

You have a kind heart, and your words have touched me. Thank you Trinh.

Hugs to you and your family,



At 8:57pm on April 16, 2011, Andrea Cleary said…
Great new pictures of the beach Trinh.
At 4:37am on March 29, 2011, Nguyen Van Anh said…

Gửi chị,

Có kết quả xét nghiệm gen của bé nhà chị chưa ạ?Hay chị thử yêu cầu FV gửi đi phòng xét nghiệm Biomnis xem sao.Lúc trc thằng nhỏ nhà em cũng gửi đi Biomnis đó.

Vân Anh

At 9:18pm on March 27, 2011, Andrea Cleary said…


Bones and spine are strong. He slipped in the bathroom tonight and fell, but he will luckily only have a bruise.

Need new braces for night time because they start to be too tight on his feet.

He told us about a girl that he likes in his class! She helps him carry his school bag. I hope she remains his friend.

Take care dear Trinh.



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