Tracy
  • Female
  • South Egremont, MA
  • United States
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Name(s) of child(ren)/individual(s) with Duchenne:
Charley
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
South Egremont, MA

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At 6:29pm on January 16, 2009, christine good said…
We just found out for sure this year. We had been told for several years that he had Asperbers syndrome. A new MD last year, did a CKU. We were totally shocked. We are still in shock but hoping for a cure. Thaks for all the work you have done with AVI. We are very hopeful. Any advice?
 
 
 

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