I tried to join but didnt much info. I have muscular dystrophy all my life and thought I would share some thoughts of things that helped me. Hope you can approve me. I dont want to use my full name on the net. I try to keep my personal life private. My brother also had MD and died 8 years ago. Thanks.
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Welcome Tom! We hope using the community site to connect with families all over the world to share stories, news, and information about Duchenne is empowering for you and your family.
Please don't hesitate to contact us by phone, email, or message if you ever need anything -- 800-714-5437 - firstname.lastname@example.org
And if you haven't already, we hope you consider registering on PPMD's main website. Registering allows us to send you information tailored to parents & families of boys with Duchenne, e-newsletters, additional web-based research reports, and other information specifically targeted for members of the community.