Tina Riley
  • 52
  • Jay, ME
  • United States
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  • Eileen DeLong

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Latest Activity

Tina Riley commented on Pat Furlong's blog post BMS & The Voice of the Patient
"Huge kudos to Tayjus Surampudi and his mom for all the work they both had to have done for him to be prepared for Harvard. That's a rare accomplishment for any young person, and, knowing what life with Duchenne is like, I am completely…"
Jan 22, 2015
Tina Riley replied to Tammy's discussion Deletion of Exon 45 (Out of Frame) in the group Deletions
"Hi Tammy - My son Bryan is 12 and still walking, though it's becoming a struggle for him. He uses a wheelchair for most of his school day and shopping, but never at home. Stairs are out of the question at this point."
May 17, 2012
Tina Riley joined PPMD's group
May 17, 2012
Tina Riley is now a member of PPMD Community
Mar 5, 2009

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Bryan
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Jay ME

Comment Wall (1 comment)

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At 10:30am on March 6, 2009, Eileen DeLong said…
Hi Tina,
Welcome to our family.
We live in NH and I created a group for NE families you may want to join.
Eileen
 
 
 

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