"Tom, thank you again. i just got to read about y'all. You guys are an inspiration! I am very sorry for your loss as well. No one can imagine what its like to go through. When you build all of your life around that…"
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Thomas Hoel
- Male
- Saint Paul, MN
- United States
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Jessica Morell Schrock left a comment for Thomas Hoel"No, we won't be able to attend the conference this year due to prior family commitments, but we will definitely consider it for next year. Thanks again for reaching out and for the e-mail, I and my family really appreciate it."
"Hi Pamela, I happy to hear the trasnsition to middle school is going well for Jacob. We always had difficulty with transitions no matter what the source. I can only share with you my experience and hope that gives you some insight as you…"
Jessica Morell Schrock left a comment for Thomas Hoel"Thanks Tom and sorry it took me so long to respond. Thanks so much for your kind response regarding our son Jaxson. We are hopeful that the research they are doing on exon-skipping and some of the early stem cell research will result in…"
"Hi Anna, I had to do a double look at your reply. For a moment, I thought I wrote it and forgot I posted it!! Amazingly similiar story to mine. They are the ones in denial. You are doing a wonderful job with Dylan. It…"
"Yes, like being in a fishbowl with everyone in the room watching you swim. I get a little worked up over this subject because I lived it. You have enough struggles ahead without allowing others, who can’t fully empathize the…"
Profile Information
- About me:
- My wife Susan and I own and operate an outpatient clinic that provides physical, occupational, and speech therapy to children and adults. Our son Anthony inspired us to start the clinic in 2000, and we have been blest to be able to help many families with their challenges as others have helped us.
- About my family:
- Susan and I have three children; Matthew (19), and Meghan (14), and Anthony, who passed away on October 24, 2011 at the age of 22 from DMD.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Anthony
- Age(s) of child(ren)/individual(s) with Duchenne:
- 19 or older
- City and State:
- Woodbury, MN
- Country:
- USA
Thomas Hoel's Photos
Comment Wall (8 comments)
- At 1:29pm on May 25, 2012,
MommaToo said… Tom, thank you again. i just got to read about y'all. You guys are an inspiration! I am very sorry for your loss as well. No one can imagine what its like to go through. When you build all of your life around that amazing person, and then they are gone...well things just don't really feel right afterwards. Maybe with more time. I am hoping to start a volunteer respite for families with DMD, and maybe even other ailments. Since we are military, that was the one thing we never had that could have helped us so much. I am finding out that its not s easy as it sounds due to all of the potential legalities-BUT I will not give up on this! I just want to help others-and maybe use Brandon to inspire OTHERS to help others. Thanks for the shoulder...
- At 10:55am on May 24, 2012, Jessica Morell Schrock said…
No, we won't be able to attend the conference this year due to prior family commitments, but we will definitely consider it for next year. Thanks again for reaching out and for the e-mail, I and my family really appreciate it.
- At 8:47pm on May 22, 2012, Jessica Morell Schrock said…
Thanks Tom and sorry it took me so long to respond. Thanks so much for your kind response regarding our son Jaxson. We are hopeful that the research they are doing on exon-skipping and some of the early stem cell research will result in miraculous treatments for Jaxson and all the other boys with DMD.
- At 11:56pm on May 1, 2012,
StaffKathi Kinnett said… - Thanks Tom! I couldn't be more excited to be here !!
- At 3:12pm on April 20, 2012, Brian Goldberg said…
Thank you Thomas. I have been associated with PPMD since around 2000. My son Travis has DMD and was diagnosed just before birth. He is 16 now and doing pretty good.
- At 10:32pm on April 14, 2012,
Elaine Jenkins said… Thank you for welcoming me. I admire your drive as a father of 2 sons with DMD.
- At 8:45am on April 5, 2012,
StaffKathi Kinnett said… Tom - Thank you so much. It's more than my pleasure to be here. I am honored to have an opportunity to do as much as I can to help the PPMD community and to work with this amazing team!
- At 7:25am on May 29, 2010,
StaffPat Furlong said… - Tom, I hope you are doing well. Let me know the next time you are in Cincinnati.
Pat
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Events
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Paint for Peyton to end Duchenne
June 8, 2012 from 6:30pm to 7:30pm – Spirited Art
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