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Thomas Hilliker
  • Male
  • Hobart, IN
  • United States
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Exon deletion of 63-67

Started this discussion. Last reply by Thomas Hilliker Mar 23, 2012. 2 Replies

Does anyone have any information on these exons. I know exon skipping is not an option because of the complexity of these exons but that is where my knowledge ends..

Exon deletion of 63-67

Started this discussion. Last reply by Thomas Hilliker Mar 22, 2012. 1 Reply

Does anyone have any information on these exons. I know exon skipping is not an option because of the complexity of these exons but that is where me knowledge end.

 

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Profile Information

About me:
I am a very loving family man that would do anything to keep my family safe and healthy.
About my family:
I am thirty-one years old, my wife is thirty-two, we have been married now for thirteen years. She and I have two daughters one twelve and the other eight and two sons one six and the other two.
Name(s) of child(ren)/individual(s) with Duchenne:
Jacob Hilliker
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Hobart, Indiana

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Comment Wall (3 comments)

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At 1:50pm on March 29, 2012, Cindy Tiede said…

HI Thomas - Thanks for the add.   How old is your son?   My Dominick is 12 and in 6th grade. 

At 12:29am on March 17, 2012, Bruce Farrar said…

Thank you for the note Thomas. I will be at the West Coast Connect and hopefully they will talk more about the uptrophin and progress. We will be talking to a few people about the Canadian and Europe steroid too. You aren't the first person to mention that it may be better than the USA version.

At 1:53pm on March 13, 2012,
Staff
PPMD
said…

Welcome Thomas- We hope using the community site to connect with families all over the world to share stories, news, and information about Duchenne is empowering for you and your family.
 

Please don't hesitate to contact us by phone, email, or message if you ever need anything -- 800-714-5437 - community@parentprojectmd.org

 

And if you haven't already, we hope you consider registering on PPMD's main website. Registering allows us to send you information tailored to parents & families of boys with Duchenne, e-newsletters, additional web-based research reports, and other information specifically targeted for members of the community.

 
 
 

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