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Teri M. Renken
- Longmont, CO
- United States
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Teri M. Renken's Discussions
Non-Carrier Mom's
Started this discussion. Last reply by Teri M. Renken Nov 6, 2011. 1 Reply 0 Favorites
My son has DMD with a deletion of Exon 50. I was wondering from the population of parent's where the mom is not a carrier, do other neurological problems run in your family?I am not sure I am asking…Continue
Teri M. Renken's Page
Latest Activity
Teri M. Renken replied to Bains's discussion Using gait belt"From my experience, a gait belt -when used properly- is perfect for his sistuation. That is, if he can indeed secure himself once in a standing position. It just gives that little bit of umph that he needs to get on his feet. Also, it is the…"
Teri M. Renken replied to Sara Savalli's discussion safety grab bars"For the toileting situation, We found that having a commode over the stall of the toilet worked best. This is because it was easier for my son to push up than to pull up. Also, the commode is higher up than the toilets usually are so it isn't…"
Teri M. Renken replied to Dina's discussion backpacks for wheelchairs"We went through that and were unable to find anything that worked within the range of motion he had. That was pretty frustrating. The closest thing we found is a soft computer bag type of thing and we tightened up the straps. Unfortunately, he was…"
Teri M. Renken commented on Ian Anthony Griffiths's blog post Lets do some self counsel......"Ian,
I appreciate how real you are. My son deals with so many of the same feelings. Alienation by others (even family) has been the most hurtful. As he gets older and the disease takes its course it seems that people are less and less…"
Teri M. Renken commented on Ian Anthony Griffiths's blog post 8 Point Plan to coping with DMD for parents"You sir, are an inspiration. Thank you."
Teri M. Renken replied to Susana Arroyo's discussion Deletion of Exon 50 in the group Deletions"My son has a deletion of Exon 50. He will be 20 this May. Though classified a quadriplegic, he can still play on his game controllers and type (peck typing). He is able to feed himself using a high table. Once his arms are on the table he is able to…"
Adele left a comment for Teri M. Renken"most of the people on PPMD are parents of the younger crowd. I'm also on DMD pioneers, DMD support and the MD-list. All are groups on Yahoo.
Jason is going to be 27 in April. All in all, doing pretty good."
Teri M. Renken replied to Kira Mullaly's discussion Exons 51-53? in the group Deletions"You are welcome. Best of luck to you. I am glad you are tapped into this site so that some of your questions can be answered and if nothing else, support. Please contact me anytime if you need to talk, be angry, vent, feel hopeless....it is all very…"
Teri M. Renken replied to Kira Mullaly's discussion Exons 51-53? in the group Deletions"I am so sorry to hear of his diagnosis. Realizing that you just found out a year ago hit a tender spot in my heart.
When I found out about my sons disease I was one of the "angry moms" at the E.R. I took him in thinking he had a…"
Teri M. Renken replied to Kira Mullaly's discussion Exons 51-53? in the group Deletions"Yes, I was tested and am not a carrier. They said that there was a mutation of his dystrophyn gene 3 days after conception. I have two younger boys and they do not have DMD or any other muscle disease. Do you or your other kids have any health…"
Profile Information
- About my family:
- I have a 19 year old son with Duchenne's Muscular Dystrophy (deletion of Exon 50). I also have a 13 and 9 year old son. My husband is a wonderful help and joined our family in March 2006.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Jesse James Gunn
- Age(s) of child(ren)/individual(s) with Duchenne:
- 19 or older
- City and State:
- Longmont, CO
- Country:
- USA
Teri M. Renken's Photos
Comment Wall (1 comment)
- At 10:53am on February 8, 2012, Adele said…
most of the people on PPMD are parents of the younger crowd. I'm also on DMD pioneers, DMD support and the MD-list. All are groups on Yahoo.
Jason is going to be 27 in April. All in all, doing pretty good.
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Events
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Paint for Peyton to end Duchenne
June 8, 2012 from 6:30pm to 7:30pm – Spirited Art
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