Teri M. Renken
  • Longmont, CO
  • United States
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Non-Carrier Mom's

Started this discussion. Last reply by Teri M. Renken Nov 6, 2011. 1 Reply

My son has DMD with a deletion of Exon 50. I was wondering from the population of parent's where the mom is not a carrier, do other neurological problems run in your family?I am not sure I am asking…Continue

 

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About my family:
My eldest son is my son who has Duchenne's Muscular Dystrophy (deletion of Exon 50). I also have two younger sons. My husband is a wonderful help and joined our family in March 2006.
Name(s) of child(ren)/individual(s) with Duchenne:
Jesse James Gunn
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
City:
Longmont, CO

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At 10:53am on February 8, 2012, Adele said…

most of the people on PPMD are parents of the younger crowd.  I'm also on DMD pioneers, DMD support and the MD-list.  All are groups on Yahoo.

 

Jason is going to be 27 in April.  All in all, doing pretty good.

 
 
 

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