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Teresa Female Bremerton WA United States: Favorite

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About my family:: I have 3 boys with DMD five children all together

Name(s) of child(ren)/individual(s) with Duchenne:: Jeffery chrisopher joseph

Age(s) of child(ren)/individual(s) with Duchenne:: 0-3, 4-6, 13-18

City:: Bremerton Wa

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Jeffery is in surgery now please pray for him

Posted on March 19, 2009 at 12:33pm 3 Comments 0 Favorites

Jeffery is in surgery now please pray for him

upcoming sugery

Posted on February 23, 2009 at 3:46pm 3 Comments 0 Favorites

I have mixed emotions about my sons upcoming surgery. I take everyday one day at a time put I feel when it comes closer to the time I have been having panic attacks. I enjoy every minuet that I have with my boys. Everyone says he will be ok and not to worry. but reality what if they are wrong. I wish people would not tell me that he will be fine. It doesnt take any fear away. I want to say what if he isn't can I come to you and say you were wrong. I think about my son every moment now. I go… Continue

spinal fusion

Posted on January 30, 2009 at 8:41pm 2 Comments 0 Favorites

Jeffery has scoliosis and they recomended the spinal fusion. Is there anyone out their who knows about this. I'm terrified is this a goood idea.

Guilt

Posted on January 9, 2009 at 2:13pm 6 Comments 0 Favorites

2 years ago I was going through some ruff times. I was trying to do it all. I have 5 children all together 3 with DMD. There was a school nurse that asked me a question that I will never forget. For one did I know what birth control was and why did I decide to have children. She thought it was irresponsible to continue having children after I found that my first son had DMD. She wanted to know why I didnt abort the other children when I knew before I had them that they Could possible have DMD.… Continue

IEP's Its hard to hear the bad news

Posted on December 15, 2008 at 7:34pm 6 Comments 0 Favorites

i have 3 boys with DMD, I just recently went to my 6 year old sons IEP. It is hard to sit through it. Not only is my son affected with DMD he has major learning disibilities. I felt like a target in the room they sat and told me all the things that he couldnt do it was devestating.They are pulling him out of regular kindergarden and putting him in a self contained classroom. I met with the school phychiatrist, teacher, ot/pt and principle. I felt so alone in there about five minuets into the… Continue

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At 4:51pm on March 3, 2011, kimmy watters said…: hi teresa how are you , my name is kimmy watters and i am a good friend of mindy colby. its painful enough to have one son with but with three. you are truly my heor.kimmy watters

At 11:09pm on October 28, 2008, Sharyn Thompson said…: Teresa,

It is hard enough for my husband and I to come to terms with having our only son diagnosed with DMD, but to have 3 would be totally incomprehensible. My heart goes out to you and your 3 boys. I know nothing I say can make you feel better, to feel what I am feeling threefold must be unbelievable. You are doing the best you can, though I know there are days when you probably feel like giving in. But don't give up, your boys are there for you and you are there for them. You need to make your family unit strong, and hopefully they will understand and appreciate all you are doing for them. Be strong, and on those days where you find it all too hard, come on here and we will all be there as a shoulder to cry on or an ear to scream in. We are all here for you!

Sharyn.

At 10:00am on October 28, 2008, Kari said…: Welcome Teresa to PPMD Community. You will find your needed support here. You have come to the right place. I myself could not imagine having 3 boys with DMD. I only have one child and it is hard enough. Enjoy each and every day with your children as each day is a gift from God. We have the knowledge ahead of time, where as most do not and lost their children without having the ability to know and appreciate what they had. Kari Isaiah 40:31