Hi Tara, would you please email me and give me some information about the Dr and the work being done regarding DMD. I did go on the UNC web site and sent an email to the Dr yesterday after I read your comment. My email address is email@example.com I look forward to hearing from you. Grammy Pat
I'm still trying to figure out how all this works and hope I'm writing this in the right place. Brady goes to Dr Wong in Cincinnati. He was misdiagnosed in Charlotte as having Beckers. Before being diagnosed he was given a solid year of physical therepy on his legs which did him more harm than good. We have pretty much lost faith in the doctors in Charlotte but do not know about any doctors at UNC, nor have we gotten any kind of help from the MDA in Charlotte? Please let me know of any worthwhile resources in my area. Please tell me more about Dr Samulski. Thank you for emailing me. pat
Thanks for joining our group, Tara. Please let me know if I can ever be of any help to you. We are still new to this "community". Our seven year old son, Brandon was diagnosed with DMD 10 months ago. We live in Greenville, S.C., but are from Rocky Mount, N.C. which is very close to Chapel Hill. God bless you for your work.