Tapio
  • Male
  • Minneapolis, MN
  • United States
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Tapio's Friends

  • Shellie Buriak
  • Anneke Haku
  • Cheryl Markey
  • Rebecca B
  • Shelly Johnson
  • Tanya Fleming
  • Jack and Terry Kirley
  • Jennifer Shumsky

Tapio's Discussions

 

Tapio's Page

Profile Information

About my family:
We are a family of 5 living in Minneapolis, Minnesota. My wife and I have 2 daughters and a son. Our son, Jack, was diagnosed in October, 2008 with DMD.
Name(s) of child(ren)/individual(s) with Duchenne:
Jack
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Minneapolis, Minnesota

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Comment Wall (8 comments)

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At 9:52am on September 21, 2010, Shellie Buriak said…
It was nice to meet your beautiful family this last weekend. Hope you had a good time.
At 10:13pm on September 12, 2009, Jennifer Shumsky said…
Hi Tapio,
Obviously I got your message a bit late on the support meeting today. We have not really found the meetings something we are able to make it to yet. It is so far away from Shakopee to be that early in the morning and we would have to find a baby sitter for our daughter. I have spoken a couple time with Kelley to ask why they can't offer sibling care as an option. That was available in the past at support groups and was a big help. We would love to get together with you all some other time though, with kids or without. We try to do things with Jack and Terry Kirley also, You met Terry with us at the previous MDA meeting and they may have been at the meetings today. We could certainly include them in any get together if you would like.
I hope you are all doing well! I look forward to connecting with you and Anneke again!
At 6:54pm on March 30, 2009, Rebecca B said…
Hi,
I am new to this site as I am from the UK.
I am mom to George, age 5, with DMD. I have some amazing friends who are cycling 20,000 miles for Duchenne. Starting in Halifax and cycling via Augusta and Rochester, Buffalo, Chicago, Mineapolis...Vancouver down to SF, LA and then all the way down to Argentina.

Please join the group "Cycle the Americas". I think they will be cycling near you - if are interested in finding out more or meeting them on their journey (they really want to meet local communities and DMD families) please get in touch.
I spend every spare second campaigning for research and awareness of DMD - would be great to have you on board with this adventure!

Best wishes
Rebecca Bellinger

www.cycletheamericas.org
At 10:45pm on March 18, 2009, Jennifer Shumsky said…
Hi Tapio! My husband Frank and I met you and your wife at the MDA presentation at the Shriner's Hospital a few months ago. I added her as a friend here also. I'm happy to see you here also. My husband has asked about you a few times to see if I knew how you were doing. It's affects dad's so differently than us mom's at times. We would love to get together some time with the two of you, but if you would like to have "man/dad talk" anytime my husband's email is fshumskyiv@comcast.net he would welcome any contact from you. He doesn't really do to much on here, doesn't even have his own account. Take care and I hope you are all staying healthy! God Bless!
At 8:07pm on November 2, 2008, Amy Wickert said…
Sorry to hear about your son. I am glad you found this site. It sure helped me over the last year or so. Hang in there!!
At 11:16pm on October 28, 2008, Sharyn Thompson said…
I am sorry to hear about Jack's diagnosis. The emotions you must be feeling are also still so raw in my mind. Since we are unable to (somewhat) control our sons' destinies, all we can do is fight! My husband and I are not going to go down without a fight - our guns are blazing and we will do whatever it takes to find a cure. This especially has been the way my husband has coped with the news of DMD finding its way into our lives. He cries and he fights. He spends many hours on the computer and the phone, trying to get financial support off corporations, friends, and friends of friends to fund research into finding a cure. If we all did this, we might be that much closer to saving our sons!

Tapio, we are all here for you and for your family. Many of us have been here for years, so if you need advice or a shoulder to cry on, you are in good company.

Sharyn.
At 10:48pm on October 26, 2008, Kari said…
Welcome Tapio to PPMD Community. Sorry to hear of your recent diagnosis, but you must know you came to the right place.
At 5:04pm on October 25, 2008, Julie Garcia said…
Hello,

I just read you recently learned of your son's condition. I am so sorry for your son's diagnosis. I hope this site helps to guide you in a better future for your son.

Please take care,

Julie
 
 
 

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