Tao Wang
  • Male
  • Pleasanton, CA
  • United States
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Wait four months to join clinic trial or start with prednisone now

Started yesterday 0 Replies

My son Max was diagnosed with DMD less 2 weeks ago. It was hell to swallow this while keep tracking all relevant information for his treatment. We now face a dilemma and would like to hear your…Continue

 

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Tao Wang posted a discussion

Wait four months to join clinic trial or start with prednisone now

My son Max was diagnosed with DMD less 2 weeks ago. It was hell to swallow this while keep tracking all relevant information for his treatment. We now face a dilemma and would like to hear your suggestions based on your experiences. Max is 4 and since he has not taken any medication he is eligible for two clinic trials in UC Davis where the medicine in test are supposed to have less side effects - called Vamorolone and Catabasis if anyone came across it. Both trials are for about 1 year. The…See More
yesterday
Tao Wang is now a member of PPMD Community
Mar 12

Profile Information

About me:
I am father of Max, who is now 4 and recently diagnosed with DMD
About my family:
My wife and I have two children, son Max who is 4 and daughter Raphael just about 9 months. I also have 2 lovely border collies who has been with my children since they were born.
Name(s) of child(ren)/individual(s) with Duchenne:
Max
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Pleasanton
State:
CA

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