Tao Wang
  • Male
  • Pleasanton, CA
  • United States
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Tao Wang's Discussions

Wait four months to join clinic trial or start with prednisone now

Started this discussion. Last reply by Shawn Jun 27. 3 Replies

My son Max was diagnosed with DMD less 2 weeks ago. It was hell to swallow this while keep tracking all relevant information for his treatment. We now face a dilemma and would like to hear your…Continue

 

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Shawn replied to Tao Wang's discussion Wait four months to join clinic trial or start with prednisone now
"I'm sorry to hear this too. Keith and Jill, your reply was spot on. Everything you wrote was what we've experienced. Tao, the first couple years are the worst. But yes it does get better. Our 14 year old son loves life. He's had an…"
Jun 27

Profile Information

About me:
I am father of Max, who is now 4 and recently diagnosed with DMD
About my family:
My wife and I have two children, son Max who is 4 and daughter Raphael just about 9 months. I also have 2 lovely border collies who has been with my children since they were born.
Name(s) of child(ren)/individual(s) with Duchenne:
Max
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Pleasanton
State:
CA

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