Tang Thao
  • Female
  • Sacramento, CA
  • United States
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Tang Thao's Discussions

Medical, In-home-service

Started Jun 6, 2012 0 Replies

I applied for social security disability for my son so that he can receive medical and I can apply for in-home-service. However, he was denied medical and social security benefits. The…Continue

middle school

Started this discussion. Last reply by Christina Craft Jan 30, 2013. 12 Replies

My son who is 11 will be attending middle school next year. My son has lots of friends in his class for the pass three years at this school and they help him take out things in his back pack, get…Continue

weight control

Started this discussion. Last reply by Tang Thao May 25, 2012. 4 Replies

Hello everyone,My son has DMD and is now wheelchair bound for about two years. We are struggling with his weight. He eats small servings, more fruits and vegetables, and drinks water. However, he is…Continue

 

Tang Thao's Page

Profile Information

About me:
I am a mother of a bright, optimistic boy who has DMD. He was diagnosed in 2008. He has been on his power wheelchair since 2010. My son is our sun. He brightens our day with out of the world comments and questions about anything. He is optimistic about his future. He enjoys conversations. His favorite thing to say when people ask if he goes to school is...

Are they stupid? It is only my body that is disable not my mind, heart, spirit.
About my family:
There are five children in this house hold. Three boys and two girls. Brian is the only one with DMD and the youngest.
Name(s) of child(ren)/individual(s) with Duchenne:
Briang Thao
Age(s) of child(ren)/individual(s) with Duchenne:
13-18
City:
Sacramento

Tang Thao's Blog

scoliosis surgery

Posted on November 18, 2013 at 10:16pm 0 Comments

My son Brian (13 years old) and I visited the clinic today and a lot are being discuss about my son's health now and future with many doctors. There is one thing that we have to make a decision on, which is the scoliosis surgery. I am afraid of what happens next. My son's spine has a 30 degree curvature and his pulmonary is great condition. It is a good time to get it done before it gets worst. Your thoughts, whether you or your son have the surgery or not, will give me more resources to…

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Assistant for son at school

Posted on September 10, 2012 at 11:37pm 1 Comment

Hello,

My son is in the 7th grade. I have been trying to get him an assistant in the event that he cannot move anymore. However, I have been unsuccessful. The special day class teacher is adamant that she is going to make my son independent. The truth is my son is independent. He likes to do things himself if he can. My son is the the GATE classes. He will soon need an assistant to help him with the simplest thing that need physical strength such as writing or math work. He also has…

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