We went to see Dr. Wong for the first time in May of this year. My son was diagnosed in February and the local Chicago MDA couldn't get us in until June!
Comparing our experience with Dr. Wong to that of the local Chicago docs is night and day. We spent three full days at Cincinnati Children's compared to about 4 hrs at Rush. Dr. Wong and her staff seem to genuinely care about the boys and are very thorough. We did blood work, physical tests, cardiology (they did an ekg and sonogram), radiology, physical therapy, etc. But the thing I was most impressed with was the time Dr. Wong spent with us. She is very clued in to this condition and spoke with us at length. She also gave us a good bit of research on predisone vs. daflazacourt. Long story short - the trip is completely worth it and my wife and I feel we are getting our son the best care available.
If you want more info you should probably contact my wife! Jessica Divin - it's either Jessica Divin or The Divins.