"Don't be too worried about the cardiac issues. It is pretty rare that those could be serious. And even so, they would not show up until adulthood. I am a carrier and I go to cardio every other year just to be safe.
We are not getting our…"
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Tamara Walters
- Female
- St. Louis, MO
- United States
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Tamara Walters's Groups
Tamara Walters's Discussions
Lightweight Wheelchair for Travel
Started Mar 2, 2011 0 Replies 0 Favorites
First Time to MDA Summer Camp
Started this discussion. Last reply by Michelle Gonzales Feb 8, 2011. 2 Replies 0 Favorites
Financial Help for Accessible Vehicles ?
Started this discussion. Last reply by Susan Rathfelder Dec 2, 2010. 5 Replies 0 Favorites
Tamara Walters's Page
Latest Activity
Tamara Walters replied to Sherri Hadley's discussion I feel so horribly guilty"So sorry - I think we have all been there at times as well! Anyway, I like Michelle's suggestion to get involved with your local telethon. I truly feel there is something therapeutic about getting out there are doing something! We are super…"
Tamara Walters replied to Vickie Bielefeldt's discussion Stretches"This is a great document with pictures of the basic stretches for DMD boys. Hope this helps! We also do our stretches in the pool, with Zach laying back on a pool noodle."
Tamara Walters replied to Donna Cicardo's discussion steroid dosing every three days?"We also do the Fri and Sat larger doses and it seems to work well. His vertical growth seems to be normal and has no behavioral issues with the drug. I would also take calcium since the steriod depletes the bone. Our son broke his leg last year and…"
Tamara Walters replied to Jonathan's discussion Mobility Devices"I felt the same way when my son was that age, about protecting him from the knowledge of DMD. However, for our son it made him feel better to know that he had a specific problem. Before he thought he was just slow and not as good as the other kids.…"
Tamara Walters replied to Tamara Walters's discussion Purchasing a New Vehicle ?"I know this is an old post. We ended up getting the Bruno Turny Chair for a minivan and it has been great!"
Profile Information
- Name(s) of child(ren)/individual(s) with Duchenne:
- Zachary
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City and State:
- St. Louis, MO
- Country:
- USA
Tamara Walters's Photos
Comment Wall (6 comments)
- At 4:28pm on March 1, 2010,
Christine McSherry said… - Hi Tamara,
The JettRide ll will be coming through Kansas City the end of July, early August 2010!! We would love to connect with you - please see the site, www.jettride.org
I would also like to send you a packet of information and a copy of the JettRide 2007 movie - my daughter did the ride in 07.
Let me know, we would love to connect and spread awareness about DMD...also to connect FAMILIES together across the countrry!!!!
Let me know asap,
Christine
- At 7:51am on August 22, 2008,
Kimberly Damron said… - Hey Tamara,
We are near Baton Rouge, Louisiana.
- At 9:53pm on June 26, 2008,
Karen said… - Yes-that is country Canada. AJ takes Deflazacort (like Predinsone) and Dr. Biggar prescribes the meds for him and he follows AJ as well in his study there.
- At 8:15am on June 26, 2008, Karen said…
- Yes.. Wildwood is in St. louis. I hope the trials are going good. We see Dr. Connolley and Dr. Biggar in Canada
- At 7:32am on June 24, 2008, Karen said…
- Hi Tamara, I am a mom of a 9 year old with DMD. We live in Wildwood MO-welcome!!
- At 7:12pm on June 7, 2008,
Lisa Jones said… - Hi Tamara. I am the mom of an 11 year old with DMD. We are about 2 1/2 hours from St. Louis and see Dr. Neil at St. Louis Children's. Welcome to the PPMD community.
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Events
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Paint for Peyton to end Duchenne
June 8, 2012 from 6:30pm to 7:30pm – Spirited Art
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