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Tamara Walters
  • Female
  • St. Louis, MO
  • United States
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Tamara Walters's Friends

  • Ruth Le Gal
  • Claire Diemler
  • Melissa Schrock
  • Matt O'Harver
  • Cheryl Markey
  • Cathy
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  • Lisa Jones

Tamara Walters's Discussions

Hospital Bed? Adjustable Bed?

Started this discussion. Last reply by Michae Jensen Jan 23, 2013. 1 Reply

Home Modifications or New Home?

Started this discussion. Last reply by Tamara Walters May 31, 2012. 3 Replies

 

Tamara Walters's Page

Latest Activity

Claire Diemler favorited Tamara Walters's discussion Bathroom Modifications - Do I really want/need a roll-in shower?
Jul 1, 2016
Tamara Walters replied to Michele LAU's discussion how do you deal with everyday life moving your kid from a place to another ?
"Get a hoyer lift and get it NOW! You need to be very careful when lifting him, it could hurt your back and you need to avoid falls for him, especially if he is on a steriod. If you were to drop him, it could mean broken bones and surgery! We have…"
Nov 10, 2013
Matt Wallace replied to Tamara Walters's discussion Bathroom Modifications - Do I really want/need a roll-in shower?
"If you can get a  the roll-in shower, I highly recommend it. As a 30-year-old, it definitely makes life a lot easier.  It definitely has saved my parent's backs."
Jun 24, 2013
tom evans replied to Tamara Walters's discussion Bathroom Modifications - Do I really want/need a roll-in shower?
"We have travelled alot with Benjamin and have learned just how much easier a roll in shower makes bath time. Our home does not have one, but we make sure that every hotel we stay at has a roll in shower. Do yourself and your son a favor and make…"
Apr 4, 2013
Jonathan replied to Tamara Walters's discussion Bathroom Modifications - Do I really want/need a roll-in shower?
"When we built our house we put in a shower that can be rolled in and out of. I dont know if it is of use but we also moved the shower controls onto the wall near where you go into the shower rather than underneath the shower head, which is where…"
Mar 7, 2013
Beverly DeVergillo replied to Tamara Walters's discussion Bathroom Modifications - Do I really want/need a roll-in shower?
"I agree.  The more independence you can give back to your son the better.  Having to transfer in and out of tub or chair is dangerous for both you and your son.  A roll-in shower is definitely needed in the early years and later…"
Mar 7, 2013
Perlita & Gordy Hains replied to Tamara Walters's discussion Bathroom Modifications - Do I really want/need a roll-in shower?
"ABSOLUTELY -  we built an accesible home last yr and we put in a roll in shower.  Our 6 yr old can shower him self, hold on to grab bars and no need for us to help him in & out... as there are no steps/tub -  we have an accesible…"
Mar 6, 2013
Michae Jensen replied to Tamara Walters's discussion Hospital Bed? Adjustable Bed?
"Sleep number bed. My son doesn't have one because he is only 6, but we plan to get one when he is older. My husband and I just got one for ourselves. It is a split king and has the adjustable base so we can move the head and feet up and down…"
Jan 23, 2013

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Zachary
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
St. Louis, MO

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Comment Wall (6 comments)

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At 4:28pm on March 1, 2010, Christine McSherry said…
Hi Tamara,

The JettRide ll will be coming through Kansas City the end of July, early August 2010!! We would love to connect with you - please see the site, www.jettride.org

I would also like to send you a packet of information and a copy of the JettRide 2007 movie - my daughter did the ride in 07.

Let me know, we would love to connect and spread awareness about DMD...also to connect FAMILIES together across the countrry!!!!

Let me know asap,

Christine
At 7:51am on August 22, 2008, Kimberly Damron said…
Hey Tamara,

We are near Baton Rouge, Louisiana.
At 9:53pm on June 26, 2008, Karen said…
Yes-that is country Canada. AJ takes Deflazacort (like Predinsone) and Dr. Biggar prescribes the meds for him and he follows AJ as well in his study there.
At 8:15am on June 26, 2008, Karen said…
Yes.. Wildwood is in St. louis. I hope the trials are going good. We see Dr. Connolley and Dr. Biggar in Canada
At 7:32am on June 24, 2008, Karen said…
Hi Tamara, I am a mom of a 9 year old with DMD. We live in Wildwood MO-welcome!!
At 7:12pm on June 7, 2008, Lisa Jones said…
Hi Tamara. I am the mom of an 11 year old with DMD. We are about 2 1/2 hours from St. Louis and see Dr. Neil at St. Louis Children's. Welcome to the PPMD community.
 
 
 

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