Svitlana Yolych
  • Female
  • Uzhgorod
  • Ukraine
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Svitlana Yolych's Page

Profile Information

About my family:
Son
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Uzhgorod

Comment Wall (2 comments)

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At 4:50pm on October 7, 2012, Dilfuza Mendibaeva said…

Zdravstvuyte Svetlana. Menya zovut DIlfuza. U menya est 3 letniy sin kotoriy nedavno postavili emu DMD. Konechno nam eto bilo shokiruyushiy. Mi novinkie v etoy sfere i sovsem ne znaem kuda glyadet i che delat dalshe. a ochen hotela b chto  kto to so mnoy podelilas so svoimi opitami. Mojno zadam paru voprosov.Skolko bilo vashemu sinu kogda on zadiagnostirovalsa?Gde vi  berete lechenie? Vi uje na gormonah?Kakie dozi?A naznachili li emu drugie preparati kak CoQ10 i tak dalee.......Vi zanimaetes li fizioterapie? Mi jivem v Dubae . No kak ya uvidela zdes ne kotorih doktarov oni sami ne znayut o chem oni govoryat. Ya hotela ego vzyat v germaniyu na konsultatciyu i mne tam beshennie dengi  skazali.konsultatciya za 2 chasa stoit EUR 7.500. A pro lechenie za nedelyu UER 15.000.Ya daje ne i dumala chto do takoy uj stepeni dorogo. ved mnogie je semie ne mgut sebe pozvolit lish odnu konsultatciyu za  takuyu tcenu pravda. posovetuyte mne pojalusta che mne dalshe delat i kak mne bit. budu ochen rada uslishat ot vas.

At 11:43am on March 6, 2012,
Staff
PPMD
said…

Welcome Svitlana! We hope using the community site to connect with families all over the world to share stories, news, and information about Duchenne is empowering for you and your family.
 

Please don't hesitate to contact us by phone, email, or message if you ever need anything -- 800-714-5437 - community@parentprojectmd.org

 

And if you haven't already, we hope you consider registering on PPMD's main website. Registering allows us to send you information tailored to parents & families of boys with Duchenne, e-newsletters, additional web-based research reports, and other information specifically targeted for members of the community.

 
 
 

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