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Suzanne Desmond
  • Female
  • Orchard Park, New York
  • United States
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Suzanne Desmond's Friends

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Suzanne Desmond's Discussions

finding the appropriate hospital beds

Started this discussion. Last reply by Darren Mulligan Aug 8. 1 Reply

Mutations...

Started this discussion. Last reply by Suzanne Desmond Nov 24, 2008. 5 Replies

PPMD versus MDA donations...

Started this discussion. Last reply by Paul Cliff Oct 2, 2008. 16 Replies

 

Suzanne's Page

Latest Activity

Darren Mulligan replied to Suzanne Desmond's discussion finding the appropriate hospital beds
"Hi Suzanne.  Check out Rotec beds.  I have two boys with DMD (19 and soon to be 18) and we own two of these beds, never had any issues with them at all.  They are based out of Quebec. Darren"
Aug 8
Suzanne Desmond posted a discussion

finding the appropriate hospital beds

Can anyone out there tell be what brand of hospital bed out there is the best or best ones ?  My son will be 19 soon.See More
Jul 18
Hope commented on Suzanne Desmond's group Duchenne MD & Autism Spectrum Disorder
"Hello, I hope this group is still active. My boy will be 2 next month and he just got diagnosed with DMD. My question is how did you know that your boys have both Autism and DMD? My son was diagnosed with ASD when he was 14 months old and I would…"
Nov 16, 2015
Hope joined Suzanne Desmond's group
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Duchenne MD & Autism Spectrum Disorder

Patients living with DMD & Autism Spectrum Disorder. 
Nov 16, 2015
Suzanne Desmond shared Pat Furlong's blog post on Facebook
Oct 1, 2014
Suzanne Desmond shared Pat Furlong's blog post on Facebook
Oct 1, 2014
Maxine Strydom joined Suzanne Desmond's group
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Duchenne MD & Autism Spectrum Disorder

Patients living with DMD & Autism Spectrum Disorder. 
Apr 15, 2014
Jennifer Collier joined Suzanne Desmond's group
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Duchenne MD & Autism Spectrum Disorder

Patients living with DMD & Autism Spectrum Disorder. 
Dec 7, 2013
Shana Creel commented on Suzanne Desmond's group Duchenne MD & Autism Spectrum Disorder
"I just found this group and am so glad to know there are other families experiencing similar issues as we are. Suzanne, I am curious to know how your son is doing now and how old he is. My son is 11 and was also not diagnosed with ASD (PDD) until…"
Jan 25, 2013
Shana Creel joined Suzanne Desmond's group
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Duchenne MD & Autism Spectrum Disorder

Patients living with DMD & Autism Spectrum Disorder. 
Jan 25, 2013
Jennifer Chalfan joined Suzanne Desmond's group
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Splice Site Mutation

Anyone who has a Splice Site Mutation.
Aug 21, 2012
Ofir Arad joined Suzanne Desmond's group
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Duchenne MD & Autism Spectrum Disorder

Patients living with DMD & Autism Spectrum Disorder. 
Mar 6, 2012
Anita Ballow joined Suzanne Desmond's group
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Western New York Families

Families members of boys with DMD along with the boys themselves who are from the Western New York area.
Sep 28, 2011
Profile IconJennifer and PPMD joined Suzanne Desmond's group
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Duchenne MD & Autism Spectrum Disorder

Patients living with DMD & Autism Spectrum Disorder. 
Jul 19, 2011
Allyson joined Suzanne Desmond's group
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Splice Site Mutation

Anyone who has a Splice Site Mutation.
Jul 19, 2011
Suzanne Desmond posted groups
Jul 19, 2011
Susan Parzymieso joined Suzanne Desmond's group
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Western New York Families

Families members of boys with DMD along with the boys themselves who are from the Western New York area.
Jun 8, 2011
Heather Furner joined Suzanne Desmond's group
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Western New York Families

Families members of boys with DMD along with the boys themselves who are from the Western New York area.
May 23, 2011
Wendy Juzwiak joined Suzanne Desmond's group
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Western New York Families

Families members of boys with DMD along with the boys themselves who are from the Western New York area.
May 11, 2011

Profile Information

About me:
I am a wife and mother. I was born and raised in Hamburg, N.Y., suburb of Buffalo, N.Y. I currently live in Orchard Park, N.Y., with my husband and our 3 children. I enjoy Cooking, Gardening, Watching TV, Reading, Ice Skating, taking the kids around to their activities and just spending time with my family and friends.
About my family:
My husband Steven, a Professional Photographer and I were married in 1994 and we have 3 children.
Our son Francis - 18, our son Lucas (Luke) - 16 and our daughter Zoey - 14.
Name(s) of child(ren)/individual(s) with Duchenne:
Francis - age 17 ---- HEMIZYGOUS IVS55-1G>C MUTATION also Autistic Spectrum Disorder
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
City:
Orchard Park
State:
New York

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