We have a little boy Diego, who is 5 with DMD and he takes Deflazacort (Calcort) - 12 mg daily. We just arrived to Disney in Orlando,Florida and realized that we left his medicine at home!!!!!! I understand he cannot be without Deflazacort more than 24 hours and Diego does not have medicine for tomorrow. By any chance, is your son using Deflazacort? If he is can we buy or borrow any from you?? We are willing to drive and go anywhere to get the medicine and we can replace within 10 days guaranteed. Sorry to bother you wiht this! but are trying to avoid major interruptions for the boys and extendended family due to this...
Thanks for your kind attention to this,
Here is my email and phone number: firstname.lastname@example.org or (513) 765-9416
Hi Susan...I just saw your post on the Tactile Sensitivity board. Good to see the picture of you and your guys...you all look great! How's living in Charlotte? Christopher is at St. Pete College now, taking Auto CAD drafting courses and he loves it. Have your boys adjusted pretty well to the move? I guess it's been a few years now, right? Wow, how time flies!! Take care..Tracie
HELLO SUSAN, MY NAME ARE VELIA JOSHUA BREAST, WERE DIAGNOSED IN SEPTEMBER WITH DMD TURNS 9 YEARS OF AGE IN APRIL, BECAUSE BUT MY SON IT IS LOOKED A LITTLE LIKE YOUR SON, IS NOT PAST TO YOU, WHO SEVERAL CHILDREN WITH DMD LOOK LIKE, LIKE THIS YOUR SON, NOT IF IT BOTHERS TO YOU TO ANSWER SOME QUESTIONS TO ME, GREETINGS DE MONTERREY, N.L. MEXICO. IT BLESSES THEM TO GOD.