I am the grandmother of a beautiful 2 1/2 year old grandson, currently am an Early Childhood Special Educator at the University of Kansas, specializing in teacher training for over 20 years, and prior taught special education in the public schools for 17 years.
About my family:
My grandson, Eli, was diagnosed with Duchenne MD in August, 2015. At the age of 4 months, we learned he had small optic nerves and a condition called optic nerve hypoplasia (ONH), with growth hormone deficiency.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
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