Steve Dreher
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Steve Dreher's Discussions

Aminophylline Study at Children's Hospital In Boston

Started this discussion. Last reply by Ginny Ward Mar 18, 2011. 3 Replies

This is all over the internet today, but I haven't located the actual study - anyone have an idea where it is? …Continue

More from Dr. Rhodes

Started this discussion. Last reply by pop jarvis Mar 3, 2011. 1 Reply

Hi Everyone,  I know Dr. Rhodes has been discussed before - this is an e-mail he sent out recently -   South Texas Innovative MedicineDonald A. Rhodes, D.P.M., F.A.C.F.A.S.Diplomate American Board…Continue

Dr. Fallon - Biglycan - DMX Mouse

Started this discussion. Last reply by Ofelia Marin Dec 29, 2010. 5 Replies

Dr. Fallon's work is all over the web today:…Continue

Cure Duchenne's Research Index

Started this discussion. Last reply by Archana Aug 28, 2010. 1 Reply

Many of you may know of this, but it's worth checking out if you haven't seen it.  Lot's of great stuff in the pipeline: …Continue

 

Steve Dreher's Page

Profile Information

Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
NH

Steve Dreher's Blog

Gus Turned 6 - The Balancing Act (plus a song!)

Posted on May 11, 2011 at 9:00pm 1 Comment

It was a mere 5 months ago that I promised to write again soon - seems like only yesterday. But, Duchenne Muscular Dystrophy is a balancing act, and we ended up on one side of the see-saw. We spent the last few months taking care of Gus - we bought a new house - one that's better for him (not perfect,but better). There are far fewer stairs and a flat lot.  While it seems like yesterday when I promised to write, the actual yesterday was Gus' birthday. He turned 6 and I had to write in…

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Hope for Gus Blog

Posted on December 30, 2010 at 7:37am 0 Comments

Hello PPMD Community, 

 

I moved a number of blog posts to PPMD from a blog I have maintained at Word Press and Blogspot for the past year.  It looks as if I wrote them all today, but they reflect the past year, which was the first year since Gus' diagnosis.

 

I wanted to share my thoughts with this community because you are the people who truly understand the roller-coaster emotional life of having a child with DMD.

 

I wish you all a wonderful New…

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DMD and the Economics of Our Sons' Lives

Posted on December 30, 2010 at 7:29am 2 Comments

It's been almost a year since Gus was diagnosed with DMD. On the drive into work this morning, I was thinking about what I've learned about DMD since that November…

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Cousin Jake

Posted on December 30, 2010 at 7:28am 3 Comments

I wanted to share a poem written by Jake, Gus' oldest cousin. Jake is in 8th grade, and he has shown us his maturity, compassion and love for his cousin by…

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Comment Wall (2 comments)

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At 9:26am on July 6, 2010, RAKTIM SINGH said…
Hi Steve,
Were you able to attend last week's PPMD conf? Are there any further news on ACE-031?
Personally I am quite excited about ACE-031. Not sure why full community is not looking forward towards this.

Any cheerful news here.

Raktim
At 7:33pm on November 28, 2009,
Staff
Pat Furlong
said…
Steve,
Welcome to the DMD community does not seem appropriate somehow. I realize you are not here by choice. Most importantly we are all here together to work, to make life different. Please let me know how to help.
Pat
 
 
 

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