Single mom raising 2 children.I work nights at a nursing home part time.
I am a carrier of DMD and did not know about it till my son was diagnosed at age 6.Somedays are good and some days are bad.Matt also has ADHD(due to his deflazacort steroid) and Tourettes Syndrome.
About my family:
Son MAtt 12 and daughter Julianne almost 10
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
Comment Wall (4 comments)
You need to be a member of PPMD Community to add comments!
We got Malaky's CK results. 33,000
Bad news. Sorry I missed your call. My mom is here visiting until Wednesday. I am devastated again. Not sure when the bad news will end. No telling. Anyway, take care and I will see you at the group!!!!
We had Malaky's tests today. Dr. Jacob was asking if we wanted the results before or after the holliday. I opted for before. I need to know. We all need to know. I would rather have bad days knowing, than have bad days not knowing.I wonder if my heart can take any more bad news.
Have a great holloween.
They mentioned another meeting at the end of the month. I hope you can make it!!! Take care!!