Stacey Darragh's Groups
Matt ....sweet,caring.loving...Mom's Hero!!
Profile Information
- About me:
- Single mom raising 2 children.I work nights at a nursing home part time.
I am a carrier of DMD and did not know about it till my son was diagnosed at age 6.Somedays are good and some days are bad.Matt also has ADHD(due to his deflazacort steroid) and Tourettes Syndrome.
- About my family:
- Son MAtt 12 and daughter Julianne almost 10
- Name(s) of child(ren)/individual(s) with Duchenne:
- MAtt
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City:
- Ottawa,Ontario
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Events
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2017 Disneyland Half Marathon, 10K & 5K
September 1, 2017 to September 3, 2017 – Disneyland
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FACES NY - World Duchenne Awareness Night
September 7, 2017 from 6pm to 9pm – Buffalo Yacht Club
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PPMD's Every Single [One] Tour: Charleston, WV
September 9, 2017 all day – Charleston, WV
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PPMD DREAM Dinner & Auction
September 23, 2017 from 5:30pm to 9pm – Greater Tacoma Convention Center
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Comment Wall (4 comments)
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My name is Raman Grover, my son was diagnosed just last month with duchenne, i wanted to ask you if you can tell me where you get deflazacort from.
thanks,
Raman
We got Malaky's CK results. 33,000
Bad news. Sorry I missed your call. My mom is here visiting until Wednesday. I am devastated again. Not sure when the bad news will end. No telling. Anyway, take care and I will see you at the group!!!!
We had Malaky's tests today. Dr. Jacob was asking if we wanted the results before or after the holliday. I opted for before. I need to know. We all need to know. I would rather have bad days knowing, than have bad days not knowing.I wonder if my heart can take any more bad news.
Have a great holloween.
They mentioned another meeting at the end of the month. I hope you can make it!!! Take care!!