I have two boys with Duchenne Muscular dystrophy,ages 5 years and 2 years. I am a nurse at a pediatricians office in Nashville, TN. I have been married to their father, Terry, for 10 years. We were diagnoised Dec. 2008 and our lives have been forever changed.
Name(s) of child(ren)/individual(s) with Duchenne:
Jonah and Emory
Age(s) of child(ren)/individual(s) with Duchenne:
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your sons are beautiful my son Caleb is adopted and now 10. things are starting to go very fast I thought I could. handle it all however I will tell you that only prayer and Gods grace and good christan friends have gotten us where we are to day. that is a peace with what ever the day brings. now its school Caleb is in 4th grade and reading at a 6th grade level very good in math as well the problem is you can no longer read his writting so gel pens that can be erase a gal from came into staples as Im trying to find something that would work again God putting the right person at the right time to me a prayer answered. My bigger]st problem now is his taking his chair to school just now ready to be different all he does is fall I tell you this to say that its minutes of pray her and there to get the right answer to it all and never never forget to enjoy those beautiful boys and thank God what they can do what they can not what they cant much love and prayers sent your way Penny