Has anyone here experience with Clenbuterol? We consider starting our little boy on this - a doctor here is convinced that it can delay the disease as good or even better as deflazacort/prednisone…Continue
"3-30 should actually be BMD because it is in frame. We only got our confirmed DMD diagnosis once we had a biopsy and western blot test. We have chosen to not take steroids. Ryker has been in the CAT-1004 clinical trial for for 15 months and is doing…"
"I cannot understand why this other neurologist gives a becker diagnosis?! When you look at the official Leiden database and entering in-frame 3-30 this is definitely Duchenne.
How old is Karsten now? And still developing?"
"Elias is on deflazacort for 1 1/2 years now. He has no problems with weight but is very active and doing sports nearly every day. I think weight problems will start when he will no longer be able to move in that way. He does not take Emflaza (takes…"