Sif Hauksdóttir
  • Female
  • kópavogur
  • Iceland
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Sif Hauksdóttir's Friends

  • Dilfuza Mendibaeva
  • Dalibor Randjelovic
  • Elena K. Pétursdóttir
  • Betty Vertin
  • Hjørleif's mamma
  • lisa burke
  • Eileen DeLong
  • Keith Van Houten
  • Brian Denger

Sif Hauksdóttir's Discussions

Prednisone how soon mood change?

Started this discussion. Last reply by Morris Adkins Oct 16, 2012. 9 Replies

Those of you that had our kids om prednisone and they had bad side affects like mood swings and behavioral issues. How long did it take since they started to take them until they showed?

 

Sif Hauksdóttir's Page

Profile Information

About me:
26 years old student, me and my husband have 2 wonderful boys that both have duchenne and a little baby girl but we do not know her carrier status.
About my family:
We have two wonderful boys that both have duchenne. Older one is born on 23rd of september 2009, and the younger one is born on october 19th 2010.

The boys have a deletion of exons 3-12, I have still not found another family with a boy with that deletion.
Name(s) of child(ren)/individual(s) with Duchenne:
Baldvin Týr, Baldur Ari
Age(s) of child(ren)/individual(s) with Duchenne:
0-3, 4-6
City:
Kópavogur

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Comment Wall (3 comments)

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At 4:11pm on November 8, 2012, Brian Denger said…

Hello Sif,

My two sons have DMD and are 20 and 18 years old.  There is considerable variation in the progression of muscle weakness between my sons.  My older son is much weaker and more affected physically.  He stopped walking at age 8 and has had spinal corrective surgery at 13.  My younger son stopped walking at 13 and has not had any surgery and I believe will not need spinal surgery.  Having variation between siblings is not uncommon for those affected by DMD. 

You have two handsome sons and I hope they are doing well.  I hope research moves fast enough to help all those with DMD lead a better life.

Wishing you the best.


Brian Denger

At 6:07am on August 27, 2012, lisa burke said…
Hi Sif, newborn screening was standard in Wales only (not all of the UK). It has recently stopped though. We'll be starting Deflazacort in Jan/Feb. Seth has deletion 45-50 so we're hopeful for exon-skipping (amongst other things hopefully too).
At 12:50pm on August 21, 2012,
Staff
PPMD
said…

Welcome Sif! We hope using the community site to connect with families all over the world to share stories, news, and information about Duchenne is empowering for you and your family.
 

Please don't hesitate to contact us by phone, email, or message if you ever need anything -- 800-714-5437 - community@parentprojectmd.org

 

And if you haven't already, we hope you consider registering on PPMD's main website. Registering allows us to send you information tailored to parents & families of boys with Duchenne, e-newsletters, additional web-based research reports, and other information specifically targeted for members of the community.

 
 
 

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