I am the grandma of a wonderful almost 8 year old boy who was diagnosed with DMD/Beckers MD about a year and a half ago. We have been shocked and devastated since there apears to be such little hope for these young boys. aWe are unaware of any family history.
About my family:
We are a loving family of educators and just everyday people. I have 8 grandchildren and 3 great-grandchildren with only Aidan as the afflicted child. We live in Ocean County NJ are are stunned by the lack of substantiated hope for this generation of boys!!!!
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
566 Oak Hollow Lane Lanoka Harbor,NJ08734
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