237 members225 Comments 0 Favorites
Started Nov 20, 2018 0 Replies 0 Favorites
Started this discussion. Last reply by Rahul Deshpande Mar 1, 2016. 1 Reply 0 Favorites
Hi friendsIs there anybody participating in BMS trials.. Please share your experiences and views as I am planning to participate in the sameThanksContinue
Comment Wall (5 comments)
You need to be a member of PPMD Community to add comments!
Join PPMD Community
Sure, my email was in one of my earlier comments. Looking forward to your post. email@example.com Stay loved.
Hi Shelley, your genetic test is the next step and your local clinical will no doubt register you on our national registry: https://nmdregistry.com.au/dmd/ But meanwhile, if you don't have our Teacher's Pack or New DX pack, email me some contact details and we can mail them and you will get newsletters very occasionally from Duchenne Foundation about opportunities. We also send out emergency wallet cards like PPMD's and encourage folks to add the information into their child's eHealth profile online. With pending approvals for treatments for approx 26% of kids, it is important to find out the mutation so that will be interesting. Connect up soon? Best regards.
I didn't think we had any families left in or around Darwin as the ones I used to know had moved. Please get in touch firstname.lastname@example.org and I can give you a call? Are you on our mail list? Best, Deb
Glad to be your friend.