I'm a 35 year old mother of 3 boys and they are the light of my life and what I am totally dedicated to. Sadly, my oldest son passed away in January 2016 from brain cancer. I am originally from southwest Virginia (Christiansburg). I graduated from Univ of Virginia in 2004. Married my amazing husband, Scott, in 2009. We lived in Indiana for 6 years and recently moved back to Virginia. We life in Midlothian, Virginia - just outside of Richmond.
About my family:
Our middle son, Will (3.5 yrs old), was diagnosed with dmd this spring. Will (the blonde in my profile picture - pic from last summer - ) - he is just an amazing person - kind, smart, funny, sweet - just wonderful. Will has a baby brother, Adam, who is 10 months old now and just adorable and so fun. Will also has an older brother, Luke, who was 20 months older than him. Luke passed away from brain cancer last year, in January of 2016 after a 10 month battle with glioblastoma. He was almost 4. Luke was amazing - brave, tough, hilarious, fun and full of energy and life every day of his way-too-short life (please check out Luke's Army on facebook or st. baldricks - ). So - our family is, to say the least, unique. We've got grit, we are resilient - our family motto for a while now has been "we can do hard things."
Needless to say, we are beside ourselves with Will's diagnosis - shocked and confused and in disbelief that something "else" has happened to our family, another medical situation for one of our children...This is the first I have been able to put out there and the first time I've had the gumption to begin to look at the parent project muscular dystrophy etc online - I am taking baby steps in coming to terms that we have another potentially very intense, very challenging "battle" in our life. But, we would move mountains for our children and our family and we know that there is so much help! and hope! and support - like, hopefully, this group!
We live in Midlothian, Virginia (near Richmond). We were in Indianapolis, Indiana for my husbands job for 6 years but came back to Virginia last summer.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
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