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  • Jay Griffin

Shawn's Discussions

For anyone interested in prayer.

Started this discussion. Last reply by Shawn Jan 12, 2016. 15 Replies

My name is Andrea, and my husband, Shawn, and I have two sons, one with Duchenne. We are followers of Jesus - Christians - and though we questioned and challenged God when we got our diagnosis, we…Continue

Deflazacort no longer available in the US?

Started this discussion. Last reply by Shawn Sep 27, 2016. 7 Replies

We ordered Deflazacort for our son nearly a month ago from Masters in the UK and hadn't received it. Got a letter today from the US FDA at the Los Angeles Port of Entry saying the shipment is being…Continue


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Age(s) of child(ren)/individual(s) with Duchenne:
Tucson, AZ

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At 8:12am on January 12, 2016, Jay Griffin said…
Andrea, I know it's early your time. Are you able to talk later.

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