Shawn
  • Male
  • Tucson, AZ
  • United States
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  • Jay Griffin

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For anyone interested in prayer.

Started this discussion. Last reply by Shawn Jan 12, 2016. 15 Replies

My name is Andrea, and my husband, Shawn, and I have two sons, one with Duchenne. We are followers of Jesus - Christians - and though we questioned and challenged God when we got our diagnosis, we…Continue

Deflazacort no longer available in the US?

Started this discussion. Last reply by Shawn Sep 27, 2016. 7 Replies

We ordered Deflazacort for our son nearly a month ago from Masters in the UK and hadn't received it. Got a letter today from the US FDA at the Los Angeles Port of Entry saying the shipment is being…Continue

 

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Shawn replied to ven's discussion Brenda Wong Leaving CMC
"We have been taking annual visits to CCH for seven years now, and were so sorry to hear Dr. Wong and her NP, Courtney, are leaving. They are starting a new Duchenne care center in Worcester, Massachusetts. Our family will miss them both (to say the…"
Mar 29

Profile Information

Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Tucson, AZ

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At 8:12am on January 12, 2016, Jay Griffin said…
Andrea, I know it's early your time. Are you able to talk later.
 
 
 

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