Started this discussion. Last reply by Sharon Kippers Mar 1, 2011. 6 Replies 0 Favorites
I am finding it harded to keep myself from feel down lately. Both my sons have dmd, Austin the youngest was diagnosed last year. I think I just need to vent. Lately all I want to do is run away. I…Continue
Posted on April 25, 2011 at 9:28pm 2 Comments 0 Favorites
Well here I am again. Getting frustrated with my son Shaun, lately he has been very moody and not sleeping and does not listen. Probably the age and steroids. Being so patient but it is wearing thin. I think that he is starting to realize that he is different.
Then there is Austin my 2 year old. He is so sweet and always smiling. Thankfully he does not have to start steroids anytime soon. Then I will have two moody boys. I'm bad saying all this stuff.
I just wish this huge…
ContinuePosted on February 21, 2011 at 8:46pm 7 Comments 7 Favorites
Struggling with emotions I can not hide.
I don't know if I can hold back the tears today.
Well I get to watch your son run and play.
I know I have two special boys
Always happy and smiling
All I feel is angry
What makes you think I have the heart for this?
Why have such confidence in me?
I know that I can handle this
I have the strengh I guess
But some days it is hard on me
To watch them always…
Continue
© 2023 Created by PPMD.
Powered by
Badges | Report an Issue | Privacy Policy | Terms of Service
Comment Wall (5 comments)
You need to be a member of PPMD Community to add comments!
Join PPMD Community
StaffStephanie Matthes said…
Hi Sharon,
No, oral steroids do not cause nose bleeds. Nasal steroids can, but not oral.
Best, Stephanie
stephanie@parentprojectmd.org
Hi Sharon,
I just watched the Clinical Trials Webinar from Feb. and saw your question, and recognized your name.
Just wanted to wave hello.
Andrea from Montreal
Sharon,
I like how you say that you stay at home while your husband works, like it's not work with 3 kids, especially 2 DMD boys! Self deprecation, I know it well. Your work as a mother (though unpaid) is valued, especially by your kids (even when they don't always show it). Please remember that . ;-)
Best regards, Andrea