"I don't mean to vent. I have injured my shoulder from picking up my boys. I canNot carry them up the stairs it hurts so bad. Where can I get help with this issue."
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Sharon Kippers
- Female
- Port Colborne,Ontario
- Canada
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Finding it hard...
Started this discussion. Last reply by Sharon Kippers Mar 1, 2011. 6 Replies 0 Favorites
I am finding it harded to keep myself from feel down lately. Both my sons have dmd, Austin the youngest was diagnosed last year. I think I just need to vent. Lately all I want to do is run away. I…Continue
Sharon Kippers's Page
Latest Activity
"Thanks Penny. It has been a rough year for our family. I have just gone through a week of appointments for my boys. It's hard to not think about it when every appointment is regarding dmd this week. I am just glad that it is done."
"Hello everyone it has been a while since i have been on here. hope everyone is doing well."
"My son Shaun is not ptty trained either and he is 5 as well. He has his moments where he will go but then the next day wants nothing to do with it. Shaun is also short for his age i was told by a complete stranger. Is that "normal"…"
"Hello
It has been a while. I am finding the holiday season is a very emotional one. I have three wonderful children 2 that have dmd. Finding it hard to deal with the fact that both my boys have dmd.
Sharon"
"Just wondering if anyone else is going through this. Lately my oldest son Shaun is being very angry and moody and will just not listen. I know that prednisone can cause these behaviors but this is just getting out of hand. Trying to stay patient…"
"Sharon,
My son was having those same problems. he would get so sad you could see it on his face, he would hide under tables, not look at people, scream, threaten to hurt himself and others, not do his work and just sit stone faced and…"
My boys
Well here I am again. Getting frustrated with my son Shaun, lately he has been very moody and not sleeping and does not listen. Probably the age and steroids. Being so patient but it is wearing thin. I think that he is starting to realize that he is different.Then there is Austin my 2 year old. He is so sweet and always smiling. Thankfully he does not have to start steroids anytime soon. Then I will have two moody boys. I'm bad saying all this stuff.I just wish this huge weight on my shoulders…See More
"My son will be 5 this year so anyone familiar with the npcc know that he will be discharged from recieving services that he needs. I have no idea where to go from here. Where can he still get therapy from? I know how the school system works but…"
Profile Information
- About me:
- I am a stay at home mom. I love my job and i wouldn't trade it for the world.
- About my family:
- We are a family of 5. Oldest is a girl, and two boys. Both my boys have been diagnosed with dmd 2 and 4. I stay home and look after my wonderful kids.We are a very busy bunch.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Shaun, Austin
- Age(s) of child(ren)/individual(s) with Duchenne:
- 0-3, 4-6
- City:
- Port Colborne
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My boys
Posted on April 25, 2011 at 9:28pm 2 Comments 0 Favorites
Well here I am again. Getting frustrated with my son Shaun, lately he has been very moody and not sleeping and does not listen. Probably the age and steroids. Being so patient but it is wearing thin. I think that he is starting to realize that he is different.
Then there is Austin my 2 year old. He is so sweet and always smiling. Thankfully he does not have to start steroids anytime soon. Then I will have two moody boys. I'm bad saying all this stuff.
I just wish this huge…
ContinueStruggling with emotions I can not hide
Posted on February 21, 2011 at 8:46pm 7 Comments 7 Favorites
Struggling with emotions I can not hide.
I don't know if I can hold back the tears today.
Well I get to watch your son run and play.
I know I have two special boys
Always happy and smiling
All I feel is angry
What makes you think I have the heart for this?
Why have such confidence in me?
I know that I can handle this
I have the strengh I guess
But some days it is hard on me
To watch them always…
ContinueComment Wall (5 comments)
- At 11:49am on April 11, 2011,
StaffStephanie Matthes said… Hi Sharon,
No, oral steroids do not cause nose bleeds. Nasal steroids can, but not oral.
Best, Stephanie
stephanie@parentprojectmd.org
- At 11:49am on March 9, 2011,
Andrea Cleary said…
Hi Sharon,
I just watched the Clinical Trials Webinar from Feb. and saw your question, and recognized your name.
Just wanted to wave hello.
Andrea from Montreal
- At 11:58am on February 28, 2011,
Jessica Divin said…
- Hi Sharon, I actually live in Chicago but grew up in Buffalo. In fact last summer we took our son Ben and the girls to Crystal Beach for the first time so we weren't too far from you! We will be returning to Bflo this summer to visit family again. Ben was just diagnosed a year ago and some days are still overwhelming especially when I start thinking about the future. I will say that we are in a better place now than when we first heard the words dmd and that this website has been a lifesaver for me. Please take care and contact me if you ever need to vent. I find that other dmd families have been such a blessing for us! Take care!
- At 8:35am on February 21, 2011,
Marian Lamberson said…
- Hi Sharron, I am so happy you found us here. We live in Ottawa and go to CHEO and our neurologist keeps us updated in the trails happening around here. My oldest is 9 and my baby is 4, they were both diagnosed, and myself as a carrier almost three years ago. Life since then has been full of up and downs. The kids are happy. That's the best news. I am also pregnant with a little baby girl due in June. I never thought three years ago we would be adding another baby. Anyway, just wanted to touch base with you, and let you know that there was another mother, with two affected sons ( a poodle, a cat, a hubby, a mortgage and another baby on the way, like I didn't have enough on my plate ) close to you. An older man with older kids told me that life would return to a new normal eventually, and it has. And it will with you. Take care my dear!! Marian
- At 2:57pm on February 17, 2011,
Sharon,
I like how you say that you stay at home while your husband works, like it's not work with 3 kids, especially 2 DMD boys! Self deprecation, I know it well. Your work as a mother (though unpaid) is valued, especially by your kids (even when they don't always show it). Please remember that . ;-)
Best regards, Andrea
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