"Hi Thomas, thanks so much for the helpful comments. I see that you lost your son Anthony last year. Thanks so much for staying connected and passing on your insights and experience. Strength to you, Dave"
"Hi Dave and Sharon: I can’t really make an argument for or against either choice. I had a standard tub upstairs and a shower downstairs designed for my son. I can mostly share our experience with the shower.
The shower was a level…"
"Our son, age 9, uses a Zappy 3EZ scooter. It is a warehouse type scooter by design and we dropped the handlebars fitting a cool set of mountain bike handlebars and he can sit ot the seat and steer. It can go pretty fast, up to about 10…"
Some friends recently raised money for us to remodel our bathrooms. Our son is only 9 and so we are aiming to kit out the bathrooms now with an eye on the future. We were expecting to build a level access shower but have read that boys prefer the warmth and bouyancy of a bath, at least in the long term. We are also told that with an appropriate hoist it is more pleasant.Can anyone support or challenge that advice? (We live in Cape Town, South Africa, so the summers are hot and the winters…See More
We're the mom and dad of the family described below...
About my family:
Dave, Sharon, Daniel and Ethan Holgate. We live in Cape Town, South Africa. Dave is a mathematician, Sharon a mom and part time lecturer in children's literature. Daniel (10) and Ethan (8) are terrors! Daniel was diagnosed with DMD at age 20 months but Ethan has been spared. They are the best of friends and fiercest of enemies...their parents are exhausted :)
Name(s) of child(ren)/individual(s) with Duchenne:
Please, no apologies, sometimes I find myself looking at this site, view some of them and reply and then do not go back into the site for a while finding that when I do, so much has changed. The Christian DMD was a discussion started by Kari and yes, it is for people who are christians and want to or would like to share on there and also it is for prayer and spiritual uplifting. I have not read much of it lately as I mentioned, it is there for us to support us. Hope you will find some of the entries of members very interesting and should learn lots from them. Please do not hesitate at any stage to ask questions or if you would like to email me too, with pleasure. Hope to hear from you sometime. I am visiting South Africa at the end of the month, spending my time with my family in Umhlanga Rocks. Looking so foward to my visit. The boys and I are visiting. Take care. Jo
Hi Sharon & Dave. Welcome to this site. We have a few people from South Africa on PPMD, feel free to go to my page and have a look. I am originally from South Africa, Johannesburg, now living in Brisbane. Your kids are beautiful.