Posted on March 6, 2010 at 2:31pm 3 Comments 0 Favorites
Hello: I am new to this blog and need some advice and tips on how to discuss the disease with my son who was diagnosed at the age of 2 and is now 8. We have never sat down and had a heart to heart discussion about why his muscles are weak and he cannot do things like riding a bike or skateboard and why he gets hurt so easily. I am never prepared for the questions he is now asking me. Keep in mind that he is developmentally behind and probably won't understand a long explanation. We need to…
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