Shana Creel
  • Female
  • Mansfield, TX
  • United States
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Name(s) of child(ren)/individual(s) with Duchenne:
Andrew
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Mansfield TX

Shana Creel's Blog

Need advice on explaining Duchenne to my son

Posted on March 6, 2010 at 2:31pm 3 Comments

Hello: I am new to this blog and need some advice and tips on how to discuss the disease with my son who was diagnosed at the age of 2 and is now 8. We have never sat down and had a heart to heart discussion about why his muscles are weak and he cannot do things like riding a bike or skateboard and why he gets hurt so easily. I am never prepared for the questions he is now asking me. Keep in mind that he is developmentally behind and probably won't understand a long explanation. We need to…

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