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Tamoxifen clinical trials

Started this discussion. Last reply by Bruce Ward 4 hours ago. 3 Replies

Good day,Does anyone knows if tamoxifen is recruiting now as I read before that the estimated enrollment date will be on September 2017,and does anyone tried tamoxifen a few or long time ago can…Continue

Abs workouts for duchenne

Started Jul 21 0 Replies

Anyone knows are abs exercises useful or not recommended for children with duchenne? and If useful ,how many repetitions and time weekly?

Duplication of Exon 53 to 57 out of frame

Started this discussion. Last reply by Sanja Kogelnik Jul 16. 1 Reply

Hello everybody, anyone has a patient son with duplication of Exon 53 to 57 ,also I would like to know would some out of frame mutations lead to Becker or mild progression for example (out of frame…Continue

Tamoxifen for children with duchenne

Started May 30 0 Replies

Dear parents my 7 year old son was recently diagnosed with dmd and we are waiting a genetic test ,he can walk till now and he started tamoxifen 2 weeks ago as I heard about tamoxifen promising…Continue

 

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Bruce Ward replied to Shady's discussion Tamoxifen clinical trials
"That is great news and consistent with the reporting from the small trial in Isreal. A trial is planned in Geneva, Switzerland where most of the Tamoxifen DMD research has taken place. A third is rumored to be forming in the US. Please continue…"
4 hours ago
Shady replied to Shady's discussion Tamoxifen clinical trials
"the doctor didn't confirm using as it is still preclinical phase,so I have took the risk of trying 4 months ago , my son is 7 years old now and thanks God he is still ambulant ,minor improvement since taking tamoxifen and he is stable now,his…"
10 hours ago
Bruce Ward replied to Shady's discussion Tamoxifen clinical trials
"I believe that trial will be carried out in Switzerland, I have not seen any mention of US sites. Have you asked your son's doctor about an off label prescription?"
14 hours ago
Shady posted a discussion

Tamoxifen clinical trials

Good day,Does anyone knows if tamoxifen is recruiting now as I read before that the estimated enrollment date will be on September 2017,and does anyone tried tamoxifen a few or long time ago can share his experienceThanks in advanceSee More
yesterday

Profile Information

About me:
Father of a 7 years old with dystrophy
Name(s) of child(ren)/individual(s) with Duchenne:
Ziad
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Cairo

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