Shady's Page

"Thx for answer, will wait for results of your trial. I wish all the best to your family"

"@Shady, thank you for the update.  I am so glad that Tamoxifen is helping your son.   I also hope and pray for more effective treatments.  For now we have to use what is available to keep our sons strong until better treatments are…"

"Dear Alex, Dear Bruce , I am from Egypt and it is sold under name of Nolvadex, I give him 10 mg once daily and it is cheap here, my decision to try tamoxifen is upon Mrs.Galia shared experience and it's promising results on mice,I have observed…"

"In the US Tamoxifen, also known as Nolvadex or Tamifen, is inexpensive and available via off-label prescription.  The complication would be finding a doctor willing to write the prescription.  It looks like you are in Russia.  I would…"

"Please tell us at least every month about the state of your child and general observations. I really hope for tamoxifen as a support before finding a treatment.. Where do you buy tamoxifen? Here is one more discussion of…"

"That is great news and consistent with the reporting from the small trial in Isreal. A trial is planned in Geneva, Switzerland where most of the Tamoxifen DMD research has taken place. A third is rumored to be forming in the US. Please continue…"

"the doctor didn't confirm using as it is still preclinical phase,so I have took the risk of trying 4 months ago , my son is 7 years old now and thanks God he is still ambulant ,minor improvement since taking tamoxifen and he is stable now,his…"

"I believe that trial will be carried out in Switzerland, I have not seen any mention of US sites. Have you asked your son's doctor about an off label prescription?"