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Shady's Discussions

Tamoxifen clinical trials

Started this discussion. Last reply by Sandro Jan 21, 2018. 11 Replies

Good day,Does anyone knows if tamoxifen is recruiting now as I read before that the estimated enrollment date will be on September 2017,and does anyone tried tamoxifen a few or long time ago can…Continue

Abs workouts for duchenne

Started Jul 21, 2017 0 Replies

Anyone knows are abs exercises useful or not recommended for children with duchenne? and If useful ,how many repetitions and time weekly?

Duplication of Exon 53 to 57 out of frame

Started this discussion. Last reply by Sanja Kogelnik Jul 16, 2017. 1 Reply

Hello everybody, anyone has a patient son with duplication of Exon 53 to 57 ,also I would like to know would some out of frame mutations lead to Becker or mild progression for example (out of frame…Continue

Tamoxifen for children with duchenne

Started May 30, 2017 0 Replies

Dear parents my 7 year old son was recently diagnosed with dmd and we are waiting a genetic test ,he can walk till now and he started tamoxifen 2 weeks ago as I heard about tamoxifen promising…Continue


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Father of a 7 years old with dystrophy
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